My story

Nicky West’s dream is being kept alive by her family, friends and those she inspired in her life. Through Nicky’s Whisper, her voice is still heard.

Nicky worked hard to tell people about cystic fibrosis (CF) and to raise money to fund gene therapy. Nicky knew gene therapy would be too late for her, but wanted to help younger people with cystic fibrosis and save them the pain and troubles she had to endure.

Through Nicky’s determination and the wonderful support people have shown to Nicky’s Whisper, over £200,000 has been raised in her name.

Gene therapy research is at a stage that Nicky longed to see. The UK Gene Therapy Consortium (GTC) was funded by the Cystic Fibrosis Trust to develop a gene therapy product to correct the ‘faulty’ CF gene in the lungs. This product is currently in Phase 2B clinical trials, with results eagerly expected in 2014. In March 2013 the Trust awarded a grant of £308,000 for its work to develop a viral vector as a delivery mechanism for gene therapy (Wave 2).

 

This work is complex and expensive, and Nicky was passionate about raising funds for it, right up to the day she died. Nicky would have been very excited to know that she can still inspire so many people to raise money for a cause that meant so much to her.

The money Nicky’s Whisper has raised and Nicky’s amazing efforts in the last few months of her life have made a huge difference. Please continue to support Nicky's Whisper.

Nicky’s Whisper

Remember me as someone who laughed
Who lived in the present and not in the past
When you think of illness, don’t feel sad
Just remember the good that came from the bad

Remember my voice and songs that I sang
And speeches I gave to help people understand
I lived life to the full and had no regrets
All I ask now is one last request

Follow my dream and spread the word
And through Nicky’s whisper I’ll still be heard

Nicky West 1974-2004

CF Trust

Cystic fibrosis (CF) is a life-shortening genetic disease, affecting almost 10,000 people in the UK, slowly destroying the lungs and digestive system. The Cystic Fibrosis Trust is here to beat it and make a daily difference to the lives of those with CF, and the people who care for them.

 

www.cysticfibrosis.org.uk

My gallery 1

My Teams

My company

My charity

Cystic Fibrosis Trust

Cystic Fibrosis Trust

Charity Registration No. 1079049

Cystic fibrosis (CF) is a life-shortening inherited disease, affecting almost 10,000 people in the UK, clogging vital organs with thick sticky mucus. There is presently no cure. We are the UK’s only national charity working for families with CF and to find a cure. www.cysticfibrosis.org.uk

Donations 643

Donation by Anonymous on 18/08/04

£500.00

+ £141.03 Gift Aid

I am humbled by all that Nicky has achieved and is still achieving..

Donation by sarah papa on 18/08/04

£20.00

+ £5.64 Gift Aid

You were so brave & a total inspiration

Donation by Anne Flood on 18/08/04

£100.00

+ £28.21 Gift Aid

Husband and Father of my son w/ CF

Donation by Anonymous on 18/08/04

£50.00

This is from my husband. We also raise money for the CF Trust: www.justgiving.com/specialjessica

Donation by Anonymous on 17/08/04

£5.00

+ £1.41 Gift Aid

From a parent of a newly diagnosed toddler with CF.

Donation by Helen Park-Davies on 17/08/04

£10.00

+ £2.82 Gift Aid

In memory of a very special lady who touched the hearts of everyone she met.

Donation by Sarah McIntyre on 16/08/04

£20.00

+ £5.64 Gift Aid

Donation by Emma Jones on 16/08/04

£20.00

+ £5.64 Gift Aid

Donation by Graeme Stubbs on 15/08/04

£20.00

+ £5.64 Gift Aid

Our Son has Cystic Fibrosis, Nicky was an inspiration to us all.

Donation by ALISON DILLON on 15/08/04

£20.00

Rob asked me to donate rather than have a birthday present. I can't think of a better gift. xx

Donation by Alison Parsons on 15/08/04

£50.00

+ £14.10 Gift Aid

Donation by Geoff Peters on 15/08/04

£100.00

+ £28.21 Gift Aid

Thanks for the happy memories - a true inspiration, J xx

Donation by Jonathan Edwards on 14/08/04

£100.00

+ £28.21 Gift Aid

Donation by Pauline Peters on 14/08/04

£200.00

+ £56.41 Gift Aid

Donation by Alison Harding on 13/08/04

£10.00

+ £2.82 Gift Aid

I heard of Nicky through a friend, what an inspiration.

Donation by Mandy Erakovic on 13/08/04

£20.00

+ £5.64 Gift Aid

Heard alot about her through a colleague, I hope you get to your goal.

Donation by Oliver Walter on 13/08/04

£20.00

+ £5.64 Gift Aid

Donation by Lisa Rowledge on 13/08/04

£10.00

+ £2.82 Gift Aid

Donation by Anonymous on 13/08/04

£10.00

+ £2.82 Gift Aid

Donation by Peter Hope on 13/08/04

£25.00

+ £7.05 Gift Aid

Donation by Anonymous on 13/08/04

£10.00

+ £2.82 Gift Aid

A magical whisper

Donation by Peter Neilson on 13/08/04

£50.00

+ £14.10 Gift Aid

Donation by Anonymous on 13/08/04

£10.00

+ £2.82 Gift Aid

Rob asked for this instead of a birthday present next week

Donation by Susan Hazlem on 12/08/04

£50.00

+ £14.10 Gift Aid

Donation by GARETH PHILLIPS on 12/08/04

£10.00

+ £2.82 Gift Aid

Donation summary

  • * Online donations$170,712.28
  • Offline donations$140,912.54
  • Text donations$0.00
  • Total raised$311,624.81
  • Gift Aid$36,919.70

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