My story

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My charity

Lowe Syndrome Trust

Lowe Syndrome Trust

Charity Registration No. 1081241

The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.

Donations 51

very impressive

Donation by Patrick on 12/07/06

£50.00

+ £14.10 Gift Aid

Congratulations!

Donation by Simon Rochford on 10/07/06

£20.00

+ £5.64 Gift Aid

Well done for not falling off!

Donation by Simon Lyon on 05/07/06

£50.00

+ £14.10 Gift Aid

sore?

Donation by AntiChrist on 28/06/06

£50.00

+ £14.10 Gift Aid

next time 'tour de France'

Donation by Patrick Le Joncour on 22/06/06

£50.00

Good on ya!

Donation by Hugh Nealon on 21/06/06

£20.00

+ £5.64 Gift Aid

Donation by Andre Liebrucks on 20/06/06

£20.00

Donation by mark dovaston on 20/06/06

£20.00

+ £5.64 Gift Aid

good luck !

Donation by Paul Berry on 19/06/06

£20.00

+ £5.64 Gift Aid

Now you have to wear the lycra!

Donation by Anne Rudd on 16/06/06

£10.00

+ £2.82 Gift Aid

I'll expect to see a photo of you in the yellow jersey!

Donation by stu on 16/06/06

£50.00

+ £14.10 Gift Aid

Bonne route et bonne chance!

Donation by Gordon Barnett on 16/06/06

£10.00

+ £2.82 Gift Aid

good luck Nige!

Donation by clarebear! on 15/06/06

£10.00

+ £2.82 Gift Aid

Sean Davis wishes you well but don't ask him to do it!

Donation by George Verdon on 15/06/06

£50.00

+ £14.10 Gift Aid

Best of luck but don't overdo it

Donation by Paddy Verdon on 15/06/06

£25.00

+ £7.05 Gift Aid

just dont cover the saddle with sandpaper first

Donation by david holcombe on 15/06/06

£20.00

+ £5.64 Gift Aid

best of luck for Le Tour!

Donation by Ross Jardine on 15/06/06

£20.00

+ £5.64 Gift Aid

Anything to avoid the flaky Gresham St. goods lift, eh?

Donation by Peter Binney on 15/06/06

£20.00

+ £5.64 Gift Aid

Good luck and don't fall off!

Donation by Judi Verdon on 14/06/06

£100.00

Hope it won't be too hot - you can replace the sweat with champagne when in Reims!

Donation by Isabel on 14/06/06

£20.00

+ £5.64 Gift Aid

Good luck

Donation by Daniel Condon on 14/06/06

£20.00

+ £5.64 Gift Aid

Only one bottle of wine / 100 km!

Donation by Sigurd on 13/06/06

£20.00

+ £5.64 Gift Aid

best of luck and i hope the saddle is padded!

Donation by Angela & Pat Howgill on 13/06/06

£10.00

+ £2.82 Gift Aid

Donation by Andrew Rowland on 13/06/06

£50.00

+ £14.10 Gift Aid

Good Luck

Donation by Paul W on 13/06/06

£50.00

+ £14.10 Gift Aid

Donation summary

  • * Online donations$2,535.44
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$2,535.44
  • Gift Aid$586.66

* Charities pay a small fee for our service. Find out how much it is and what we do for it.