The National Society for Phenylketonuria (UK) Ltd.
Registered charity number 273670
On JustGiving since Mar 2006
About our charity
The NSPKU exists to help and support people with PKU, their families and carers. It works closely with medical professionals in the UK. It receives no government funding and is dependent on the generosity of its members and the public to fund practical support, raising awareness and, research into the condition. It publishes a wide range of booklets and leaflets (including food lists) for parents, PKUs and medical professionals. Events - it organises conferences and study days. It also sponsors medical research into PKU. It is run by the Council of Management who are all unpaid volunteers with PKU in their families.
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Our top fundraisers
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Kate Williams
£2,941.23 raised so far -
Vicky Boardman
£2,526.37 raised so far -
Lucy Bushby
£2,340.70 raised so far -
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£1,727.00 raised so far -
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£1,315.00 raised so far -
Morag Murray
£1,253.00 raised so far