The NSPKU exists to help and support people with PKU, their families and carers. It works closely with medical professionals in the UK.
It receives no government funding and is dependent on the generosity of its members and the public to fund practical support, raising awareness and, research into the condition.
It publishes a wide range of booklets and leaflets (including food lists) for parents, PKUs and medical professionals.
Events - it organises conferences and study days. It also sponsors medical research into PKU.
It is run by the Council of Management who are all unpaid volunteers with PKU in their families.
Raise money
Make a free online fundraising page in minutes:
- Email it to friends and family
- They can donate online easily and safely with a credit/debit card
- The money goes straight to
The National Society for Phenylketonuria (UK) Ltd.
Make your page
