Story

"1 Day - £1 = a lot of money for this much-needed cause". 
To join us in creating a sea change by donating just £1 (more if you wish) on 1 day a month for Biomedical M.E Research, please text the code APFR99 £1 to 70070, or you can donate from £2 via this page. 
We chose 1st of each month as donation day, but all donations throughout the month will add to the total raised.  We support Invest in ME (IiME) as they are leading the way in UK as an independent, forward-thinking, proactive and entirely voluntary-run charity, and we have shown that every £1 certainly does count.  See more at ldifme.org 

Your donation will help to fund 1st class biomedical research into the neurological disease, myalgic encephalomyelitis (ME). This monthly 1 Day - £1 fundraiser, inspired by Ruth Gilchrist, is part of our patient-driven fundraising campaign in support of IiME, launched in July 2011, called Let's do it for ME! 

We reached our initial target of £100,000 in May 2013.  This enabled IiME's strategy for translational biomedical ME research to begin at Norwich Research Park, University of East Anglia, by fully funding the foundation study on ME and gut microbiota.  We are now raising funds for the next phase of research at UEA and a clinical trial of rituximab in ME, which IiME is organising at University College London. http://investinme.org/ResearchCurrentProjects.htm

ME is a neurological disease that can affect people of all ages, even very young children.  It has been classified by the World Health Organisation at ICD-10 G93.3, along with post-viral fatigue syndrome, since 1969.

ME was first defined in the 1950s - myalgic means muscle pain - encephalomyeltis means inflammation in the brain and spinal cord. 

ME can be of sudden or gradual onset, can range from mild to very severe, can fluctuate over time, have phases of relapse and remission, or take a more progressive form. Full recovery is rare - we want to change that.   

The hallmark of ME is a marked worsening of symptoms following even minor exertion - post-exertional neuro-immune exhaustion (PENE aka PEM).  

ME can affect almost every system in the body and organs including the heart as well as the brain.  Many patients suffer for years on end, some losing their childhood and youth to the ravages of this disease.

There is still no universal thumbprint diagnostic test, no cure, and few treatments available for symptoms, leaving doctors at a loss as to how help their patients and with often dire consequences for patients and their families.  

It's about time this changed and we are determined to make sure that happens - we now have an international community of world class researchers willing to help us and they need our help to fund their vital work - so let's make this year count - one day - one pound - one drop from lots of us to create a sea change.

Donating through JustGiving is easy, fast and safe. They’ll send your money directly to the charity and will make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. To donate £1 by JustTextGiving, text this code: APFR99 to: 70070 or you can donate from £2 via this Just Giving page.  


Please see Invest in ME charity's website at www.investinme.org or www.ldifme.org for more info about M.E. and IiME's work, and for more ways to help raise awareness and/or funds for this small charity's BIG cause.  Thank-you for your support!

Updates 17

The charity is now raising funds for the next phase of the IiME research strategy at UEA. The IiME/UCL rituximab treatment trial fund has reached £286k - target £350k. The 2 most important ME research projects at 2 top research centres. Top marks to IiME! We help them help us.

28/02/14 14:53

A whopping £2965 inc. Gift Aid and the generous matching donation helped us see in the new year, bringing the total raised so far for the IiME/UCL UK rituximab treatment trial to £281,000 - huge thanks! Tara's must-watch M.E. Video is now the gallery. Happy 1st of Feb everyone!

31/01/14 16:53

Thank you everyone for all the lovely comments and New Year donations and to the generous supporter who is matching the amount of £1250 inc, Gift Aid, which will be added to the IiME/UCL UK rituximab treatment trial page. A great start to 2014! Happy New Year to one and all!

05/01/14 17:30

£275k in the pot for the IiME/UCL UK rituximab treatment trial as we bid farewell to 2013 and a fantastic MATCHED DONATION offer to see the New Year in! £1 for £1 up to £1250 inc. Gift Aid or until 6th January 2014 - please share widely! Thanks for your support - Happy New Year!

31/12/13 18:03

£272,000 raised so far for the Invest in ME/University College (IiME/UCL) UK rituximab treatment trial - every £1 counts - thanks to all for your support! www.ukrituximabtrial.org

01/12/13 13:57

Raising money for

IiME

IiME

Charity Registration No. 1114035

Invest in ME has as its objectives to change how myalgic encephalomyelitis (ME) is perceived and treated in the press, by health departments and by healthcare professionals. We aim to do this by raising funding for biomedical research and improving education about the disease.

Donations 902

text donation

Donation by Anonymous on 01/04/14

£1.00

+ £0.25 Gift Aid

text donation

Donation by Anonymous on 01/04/14

£1.00

Thank you Ruth x

Donation by Paul Kayes on 01/04/14

£2.00

+ £0.50 Gift Aid

Donation by Rose on 01/04/14

£2.00

+ £0.50 Gift Aid

wish i could give more

Donation by jane meeps mcfadden on 01/04/14

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 01/04/14

£1.00

I just had to round up the total to an even figure!!

Donation by Claire on 01/04/14

£3.53

mobile-phone.png

A really deserving charity to raise awareness of such an awful and misunderstood disease

Donation by Kate Cronin on 01/04/14

£2.00

+ £0.50 Gift Aid

Donation by Anonymous on 01/04/14

£4.00

+ £1.00 Gift Aid

Love Tristi &maddi

Donation by Anonymous on 01/04/14

£2.00

text donation

Donation by Anonymous on 01/04/14

£1.00

text donation

Donation by Anonymous on 14/03/14

£1.00

text donation

Donation by Anonymous on 11/03/14

£1.00

£10 of this donation was given to me for making two knitted mug hugs...there are more on the way...

Donation by Lucy Macdonald on 02/03/14

£15.00

text donation

Donation by Anonymous on 01/03/14

£2.00

no more ME

Donation by jane meeps mcfadden on 01/03/14

£5.00

+ £1.25 Gift Aid

Because you folks are amazing & i can't thank you enough for your hard work. X

Donation by Mirry mitchell on 01/03/14

£50.00

+ £12.50 Gift Aid

mobile-phone.png

Donation by Eleanor Smith on 01/03/14

£1.00

+ £0.25 Gift Aid

Thanks for all your hard work on our behalf. x

Donation by Margaret Scrivens on 01/03/14

£10.00

Donation by Ian Fulton on 01/03/14

£2.00

+ £0.50 Gift Aid

For a fantastic worthy cause, in it to help all of us receive help for our futures

Donation by Carmel & Mark on 01/03/14

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 01/03/14

£1.00

Donation by Denise on 01/03/14

$20.00

Donation by Anonymous on 01/03/14

£5.00

text donation

Donation by Anonymous on 01/03/14

£1.00

Donation summary

  • * Online donations£5,169.00
  • Offline donations£125.00
  • Text donations£715.00
  • Total raised£6,009.00
  • Gift Aid£948.56

* Charities pay a small fee for our service. Find out how much it is and what we do for it.