I am Secretary to The Keratoconus Self-Help and Support Association.

I was diagnosed with the condition in my 20's and as a result I had cornea grafts (Transplants) in 1986 and 1995.

We help to raise awareness of available treatments and promote research.

I have posted my Keratoconus story on Amy Musto's blog. You can read it here:
http://amymustokeratoconusfundraising.blogspot.co.uk/p/storys.html

There is now quite a few of us supporting the Keratoconus Group. We are meeting at 9:40 to start the walk at 10:00am. Do join us.