Rebecca and Nick's page

Rebecca Taylor is raising money for PMSF UK
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Royal Parks Half Marathon 2018 · 14 October 2018 ·

PMSF UKVerified by JustGiving
RCN 1157423
We provide support to people and their families in the UK who have Phelan-McDermid Syndrome (chromosome 22q13.3 deletion). This support is provided through information, therapies and financial grants, and by organising family days and get-togethers. Thank you for supporting PMSF UK.

Story

Thanks for taking the time to visit our JustGiving page. Our friend Gibson Turner has inspired Nick and I to run the Royal Parks Half Marathon for PMSF UK. Gibson has a very rare syndrome called Phelan-McDermid Syndrome.

Please sponsor us to run the Royal Parks Half Marathon on the 14th October. There are just over 130 families who are diagnosed with PMS in the UK & Ireland, and approximately 1500 worldwide. All people with PMS have difficulty communicating, many are non-verbal and most have low tone in their limbs. All people diagnosed with PMS need additional care to support their daily lives. Please take a look at what the foundation are up to here:

http://www.pmsf.org.uk

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Donation summary

Total
£1,075.00
+ £236.25 Gift Aid
Online
£1,075.00
Offline
£0.00

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