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Rebekah's fundraiser for Brain Tumour Research

Rebekah Arkle is raising money for Brain Tumour Research

Wellbeing Activities

Brain Tumour Research Verified by JustGiving
RCN 1153487 (England & Wales), SC046840 (Scotland)
Brain tumours kill more children and adults under the age of 40 than any other cancer. Just 1% of the national spend on cancer research has been allocated to this disease. We are a leading voice calling for support and action for research into what is called the last battleground against cancer.

Story

In October 2024, I had surgery to remove my temporal lobe Brain Tumour. Brain Tumours are the biggest Cancer killer of children and adults under the age of 40.

I will be doing a series of Wellbeing activities to raise money for Brain Tumour Research for Brain Tumour awareness Month to try and find a cure for this utterly sh*t disease.

My journey began in 2020 when I had my first seizure out of nowhere during lockdown. I got diagnosed 4 months later and was told over the phone due to the lockdown rules. It wasn't for another month until I found out it wasn't cancerous. During that month, I planned my Will, drew up powers of attorney, danced with my friends. I looked at my son and husband as if it was the last time I'd see them every night. But I was so grateful for the life I'd lived so far.

Over the next 4 years, I trialled 4 different seizure medications to get my seizures under control, but had no luck. But I'm happy to say the surgery went well. All thanks to the amazing staff at St George's Hospital.

It's not quite the end of our journey yet, but I know with the support of my wonderful family and friends, I'll be ok and come back even stronger!

I also wanted to raise a bit of awareness around Brain Tumour facts I'd wish I'd known. I had no idea what a focal awareness seizure was, this is what mine looked like:

• Deja vu feeling

• Seeing picture of person in your mind

• Seeing everything & hearing everything but can't move or talk for about 3 minutes

• Tummy rolling like you’re on a roller-coaster just before you are unable to move

Please if you have any of these symptoms, go to your GP.

You can also find out more about how to help someone if you see someone having a focal aware siezure: https://www.epilepsy.com/recognition/adapting-plans/first-aid-focal-impaired

If anyone out there wants to talk about having a brain tumour, having brain surgery, or anything post op. Please just reach out.

Over 12,000 people are diagnosed a year with a primary Brain Tumour and just 12% of adults survive for 5 years after diagnosis. Over £700m is spent on Cancer Research in the UK every year, yet less than 3% is spent on Brain Tumours. By doing this bit of fundraising, I'm hoping to make a small difference and turn this diagnosis into something positive.

Donation summary

Total
£160.00
+ £37.50 Gift Aid
Online
£160.00
Offline
£0.00

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