Neil's fundraiser for Krabbe UK

Ultra Comedy Derby 29th June 2025 · 29 June 2025 · Start fundraising for this event
I’m helping raise money for Krabbe UK, therefore I'm willing to make a fool of myself for the campaign
Hopefully some of you will come and enjoy some comedy...more importantly. ⬇️
Krabbe disease, also known as globoid cell leukodystrophy, is a rare, inherited genetic disorder that affects the nervous system and the myelin that protects nerve cells.
It's a type of lysosomal storage disorder (LSD) called a sphingolipidosis, caused by mutations in the GALC gene.
This results in a deficiency of the enzyme galactocerebrosidase (GALC), which breaks down fats using water molecules.
I have family members that were/are affected by this, some of you may remember Eva Rose who sadly lost her life to this tragic debilitating disease.
Eva's younger sister... Aliza was also diagnosed with the same disease but is thriving now and is full of beans, she had to have Bone Marrow Treatment, this in turn gave the enzymes she needs to live a healthy life am is now up to all sorts of mischief. 🤣
So if you could please support the charity, it would be awesome for any future developments with Krabbe UK's fight for solutions, thanks for reading and bless ♥️
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