I am chair of Fibromyalgia Association UK (FMA UK), and have recently moved back to Whitton and on one of my Sunday walks noticed the London Loop symbol in Crane Park. I found the details on the website and gave myself the challenge of walking the whole of this interconnection of 150 miles of pathways on consecutive days to raise awareness of fibromyalgia.
My husband had fibromyalgia for many years and found first of all that it took years to get a diagnosis and then treatment was not very effective. Information and support were not readily available and many professionals did not even believe it existed.
I know I am likely to feel increasingly stiff, aching and exhausted as I complete this walk, but at least I know it will pass. People with fibromyalgia feel like this without exerting themselves and get no respite. If by doing this I make people more aware of the condition and it means better treatment so that they do not have to suffer for years the way my husband had to it’s worth it.
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