Phil Barron is fundraising for UNIQUE (Rare Chromosome Disorder Support Group)

Phil Barron's Fundraising Page

BUPA Great North Run 2009

on 20/09/2009

Photos (2)

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Team members:

Jessica May Barron my little princess

Raising money for

UNIQUE (Rare Chromosome Disorder Support Group)

Charity Registration No. 1110661

Unique provides information and support to individuals affected by rare chromosome disorders, their families and the medical and other professionals working with them. Rare chromosome disorders are lifelong conditions, often causing severe physical and learning disabilities and complex health issues. They affect at least 1 in 200 live-born babies. Most will be dependent on their carers for the duration of their lives, many unable to walk, feed themselves or communicate their needs. The disorders remain very poorly understood and Unique is a place for parents and carers to turn to for help and advice. We help them come to terms with their child’s diagnosis by providing information on hundreds of specific disorders, sensitive support through our Listening Ear service and by linking them with other families living with similar disorders. We also work to raise awareness and disseminate information among the medical and many other professionals involved, aiming to ensure those affected receive the care and support they need in their own communities.

Page owner

Phil Barron

RSS

Raised: 168%

Target: £1,000.00
Raised so far: £1,683.00

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My story

Thanks for visiting my fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Rare Chromosome Disorder Support Group gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

I have chosen to run for UNIQUE due to my daughter's recent diagnosis of a rare chromosone disorder.

Jessica May was born on 6th July 2007 and we knew then that she had problems but we only got her diagnosis a couple of months ago. She has 16q deletion with mosaicism which basically means her genetic make up is different to most peoples as she has part of her 16th chromosone missing.

Please dig deep and help me to support this very worthwhile charity. They offer amazing support and information to families like ours and this help and support costs them a lot of money.

I have never taken part in a run of any kind so this is a big challenge for me and I have been training hard. It really means a lot to me to be able to give something back to Unique. In the early days before and after Jessica's diagnosis, Claire spent many nights on the computer just trying to find answers to all the questions we had swimming around in our heads. UNIQUE was the only place we found these answers. We joined up and have had access to literature, help and also the knowledge that we are not alone.

My little girl really is the most amazing thing to ever happen to our lives, she genuinly lights up our lives and we wouldn't change a single thing about her and her conditon as her deletion is what makes her Unique xxx

	Love from Nic (bella138), J and Chas Tate xxx Donation by Smethwick Tates 20/09/09	£10.00 + £2.82 Gift Aid
	Donation by Kirsty Mallan 20/09/09	£5.00 + £1.41 Gift Aid
	Good Luck Phil! Donation by Emma,Mark,Harry and Grace Riddell 19/09/09	£5.00 + £1.41 Gift Aid
	Good Luck Phil xxx Donation by Lou & Cara xxxxx 18/09/09	£5.00 + £1.41 Gift Aid
	Good luck! Donation by Emma George and Albert (BC) 18/09/09	£5.00 + £1.41 Gift Aid
	good luck hunni sorry i could do more x x x x x Donation by lyndsay and harri 18/09/09
	Good Luck ~ a lil more towards a good cause :-)) xxx Donation by Rach aka Cros 08/09/09	£10.00
	Good luck Phil, Jess is an absolute star! Donation by Debbie Scott 08/09/09	£10.00 + £2.82 Gift Aid
	Phil, wishing you all the best in the run, Princess Jessica has a very special Daddy :o) - good luck! - Elle, Saoírse and Caoímhe Donation by Elle McDermott ( BC ) 08/09/09	£10.00 + £2.82 Gift Aid
	good luck phil-love to you all xxxxx Donation by gabby 08/09/09	£10.00
	Good luck. Donation by Natalie Andrews 08/09/09	£5.00
	Good luck Phil. My Dad was also a butcher in Bolton, so I just had to donate! Donation by Beverly Searle, CEO Unique 07/09/09	£20.00 + £5.64 Gift Aid
	For PJ! Donation by Barbara King 05/09/09	£10.00 + £2.82 Gift Aid
	Hope this helps xx Donation by Laura Kennedy 04/09/09	£5.00
	Best of luck on the run and much love to you all, Jessica is an insiparion to all the lives she touches x x Donation by 'Soapy' Sam Brooks 04/09/09	£10.00 + £2.82 Gift Aid
	Good luck! we love you and are so proud of you. Claire, Matthew & Jessica May. We love you daddy -Jessie May and Matthew xxx Donation by Phil Barron 04/09/09	£20.00 + £5.64 Gift Aid
	good luck phil & slater, me & boys shoutin for you xxxxx Donation by kezza 03/09/09	£20.00 + £5.64 Gift Aid
	Good Luck & Keep on going PJ, Love Vic_n_Olivia x Donation by Victoria Sepkes 03/09/09	£10.00 + £2.82 Gift Aid
	good luck Donation by vikki alvarez 03/09/09	£3.00 + £0.85 Gift Aid
	Good Luck Phil!! Donation by Kathy Driskill 03/09/09	£20.00
	Good Luck xxx Donation by Caryl, Richard and Chloe 03/09/09	£10.00 + £2.82 Gift Aid
	Good Luck Phil! Jess is such an amazing, beautiful little girl! Love Zoe, Tim, Brandon and Finley! Donation by Zoe Piper 03/09/09	£10.00
	Well done Phil! What a fantastic way to raise awareness for such a worthy cause. Good luck! Donation by Jessica Parkes 03/09/09	£5.00 + £1.41 Gift Aid
	Good Luck Phil, will be thinking of you and hope the weather holds out. Donation by Claire Chalder 03/09/09	£10.00 + £2.82 Gift Aid
	such a worthy cause, good luck Donation by Jenny Grimson (bc) 01/09/09	£5.00 + £1.41 Gift Aid
	Frankie says GOOD LUCK! Donation by marta&frank 26/08/09
	Good luck with the race :) Donation by Louise Burrows 26/08/09	£10.00 + £2.82 Gift Aid
	good luck! Donation by kelly wharton/excited (nags fhg) 05/08/09	£5.00
	good luck, kisses for Jess and the new baby Barron xx Donation by Fay Shipley 08/06/09	£10.00
	Go Phil! Donation by Laura Heighton 03/06/09	£10.00 + £2.82 Gift Aid

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* Total raised online:	£335.00
Offline donations:	£1,348.00
Gift Aid plus supplement:	£70.51

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.