Thanks
for taking the time to visit our JustGiving page.
You may or may not know,
but shortly after our youngest daughter, Isla, was born she began to develop
problems breathing. It was initially diagnosed as Laryngomalacia or floppy
larynx syndrome and we were told to take her home and expect her to outgrow it
by around three months old. However her symptoms got progressively worse and
one evening just after a feed she began her familiar gasping for air, but this
episode was different and she began to turn blue before passing out. We rushed
her to our local hospital and things began to move quickly. She was put under
general
anaesthetic and a machine took over her breathing for her, she was
then transported to Evelina's children’s hospital where the diagnosis was
corrected and we were told she had a double aortic arch. This is a congenital
heart defect which can be corrected by surgery.
We didn't feel it at the time, but we
soon realised we were amongst the lucky ones in the hospital that night. Isla
spent nearly a week in PICU (Paediatric intensive care unit) and a few days on
the ward recovering after her surgery. During our time on both wards we saw
children in a far worst condition than Isla. Some were on there 2nd or 3rd
round of heart surgery, and lived constantly under the shadow of an impending heart transplant, Their
parents know that one day, their child will need a new heart, and its just a
matter of time. The hospital works magic on those wards, and many, many
children stay there and most eventually go home better. Evelina has the highest
success rate of cardiac surgery on children in the country and parents come
from miles around to benefit from its care. Yet there are something’s that
these parents and their children need that can't be provided by the NHS for a
number of reasons. One of these is accommodation, they can offer a bed for a
night or two, but they simply lack the facilities for a longer stay. This is
where the Ronald McDonalds House comes in, the Ronald McDonald at Guys is an independent
children’s charity providing free accommodation and caring support for families
whose children are in hospital. Their stay can be from a few days to many
months. The House provides a 'home from home' for parents with kitchens,
playroom and a secluded garden. Sam and I feel we should count our blessing and
want to give something back after their hospitality during this time.
We have run a regular poker game for
three years now and are due to play the season finale on August 15
th,
we thought it would be a nice idea to use our annual game as a vehicle for fund
raising and are already expecting between ten and eleven players to attend on
the night. We have managed to secure
some McDonalds burgers to cook on the BBQ and it should be a nice fundraiser. The
poker alone should raise £150 for the charity and we will
be over the moon if things go as planned. But we know lots of our friends and
family wont be able to attend our event or simply don’t like poker but would
still like to donate, hence this website.
Donating through
JustGiving is simple, fast and totally secure. Your details are safe with
JustGiving – they’ll never sell them on or send unwanted emails. Once you
donate, they’ll send your money directly to the charity and make sure Gift Aid
is reclaimed on every eligible donation by a taxpayer. So it’s the most
efficient way to donate – We raise more, whilst saving time and cutting costs
for the charity.
So please dig deep and
donate now.