Roger Palmer is fundraising for RETT syndrome Association UK

Phil Palmer's Fundraising Page

RNID- Cycle London to Paris

on 26/06/2009

Evie, aged 6, riding her own bike

Photos (1)

oh wow, you need to have Flash player installed and javascript enabled

Team members:

Phil Palmer

Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Roger Palmer

RSS

Raised: 113%

Target: £2,000.00
Raised so far: £2,260.00

Donate now

My story

Thanks for visiting my fundraising page. This is my granddaughter, Evie who is now 7. Evie has Rett Syndrome. She cannot walk, talk or use her hands, but she understands lots and is working hard to learn how to communicate using pictures and simple devices. Evie endures a number of medical problems everyday, including scoliosis, respiratory problems, reflux, gastrointestinal problems and epilepsy. Researchers are working hard to find treatments for the disorder and are making good progress. I am going to cycle from London to Paris in June this year to raise money for the Rett Syndrome Association in the UK where Evie lives. RSAUK supports families affected by Rett Syndrome and also helps to fund research. I would be very pleased if you could make a donation to this cause to benefit Evie and other sufferers of this disorder. Donating through Justgiving is quick, easy and totally secure. It's also the most efficient way to sponsor me: RETT syndrome Association UK gets your money faster and, if you're a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation. So please sponsor me now!

	I was on your trip from London to Paris this week and was so inspired by your speech at dinner I just had to donate!! Donation by Dan Ramsay 30/06/09	£30.00 + £8.46 Gift Aid
	Good luck for the big ride Donation by Jenny, Stephen, Pips & Freya 11/05/09	£50.00 + £14.10 Gift Aid
	Good Luck Phil from Mack & Lyn. Donation by Mack Holmes 04/05/09	£20.00
	Brilliant Phil. I wish I had your energy Donation by Ben & Sue 30/03/09	£50.00 + £14.10 Gift Aid
	$150 (NZ)for each cheek! Donation by Cris Lee Projects Resources Ltd 29/03/09	£110.00
	keep up the training Donation by Steve and Penny Palmer 19/03/09	£50.00
	Happy St. Patrick's Day Donation by Tricia & Ray 14/03/09	£25.00
	the Graemes, Woodfields, Jensens,Taylors Donation by Antipodes donors 11/03/09	£258.00
	Donation by Gillian and Ian Corder 10/03/09	£40.00 + £11.28 Gift Aid
	Happy Times Donation by Ailsa Morrison 09/03/09	£50.00
	Happy birthday Viola, from Evie Donation by Roger Palmer 08/03/09	£50.00 + £14.10 Gift Aid
	Best wishes for the cycling Phil Donation by Eliz & Allan Edie 07/03/09	£10.00
	bon chance Donation by norman and jill 05/03/09	£25.00 + £7.05 Gift Aid
	Donation by Graeme and Win 03/03/09	£50.00
	We'll be thinking of you and Evie all the way Donation by Mary and Alastair 02/03/09	£50.00
	Allegro ma non troppo. Donation by Viola 24/02/09	£100.00
	Donation by Anonymous 23/02/09	£70.00
	Happy to double this if you're cycling back to Longon too! Donation by James, Zanna and Billie 14/02/09	£100.00
	Don't forget to cross to the right lane once you get across that Channel!! Donation by Justine & Binoy 02/02/09	£50.00
	Donation by Wolfgang Heine 01/02/09	£200.00
	Good on you Dad. Donation by Anne Palmer & Philip Todhunter 30/01/09	£40.00
	DAD's Birthday Donation by Joyce and Sue Palmer 29/01/09	£32.00
	would LOVE to come with you,cannot , so please indulge in lycra-mania for Evie on my behalf Donation by philip palmer [medius] 23/01/09	£100.00
	A grand effort, Philip, on behalf of little Evie. Donation by Lesley & Ross 22/01/09	£100.00
	We hope that the Rett Association is well supported and Evie benefits. Well done. Donation by Mirdza and David 19/01/09	£100.00
	Thanks Phil for this and all you do for Evie Donation by Ray & Tricia 15/01/09	£100.00
	Best wishes for the training Donation by Mirie & John Marshall 14/01/09	£100.00
	Donation by Philip Palmer 13/01/09	£50.00
	Thanks Phil for doing this for Evie and the other girls like her Donation by Roger Palmer 12/01/09	£100.00 + £28.21 Gift Aid

Donate now

* Total raised online:	£2,110.00
Offline donations:	£150.00
Gift Aid plus supplement:	£97.31

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.