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Robert Alston is raising money for Charcot-Marie-Tooth UK
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The Big Woody Long Distance Triathlon · 23 May 2008

Charcot-Marie-Tooth UK (formerly CMT United Kingdom) is the national support group for people affected by Charcot-Marie-Tooth Disease, aka Hereditary Motor and Sensory Neuropathy. We provide advice, support and information for people with the condition, family, carers and medical professionals.

Story

Thanks for visiting my fundraising page and supporting Charcot-Marie-Tooth Disease charity.

Nicki's uncle 'Dave' has this disease and I just want to raise peoples awareness and raise some money for this lesser known condition.

In brief, this is CMT:

  • affects people very differently, even within the same family
  • slowly gets worse of time (is progressive), causing gradual deterioration of the both the motor nerves and the sensory nerves
  • this deterioration causes the atrophy of the muscles in the foot, lower leg, hand and forearm
  • can cause foot drop walking gate, foot bone abnormalities (including high arches and hammer toes), problems with hand function and dexterity, balance problems, occasionally cramping in the legs and arms and loss of some normal reflexes
  • may cause long term pain and chronic tiredness
  • is usually passed on from parent to child, with a 50% chance of the child inheriting the condition
  • is thought to affect approximately 23,000 people in the UK
  • Affects all ethnic groups equally throughout the world
  • Is the focus a major genetic research, bringing us closer to answering the CMT enigma

If you want to know more about the disease visit www.CMT.org.uk

I'm not going to bore you all, here's 3 reasons to donate money to this charity as a reward for my efforts.

1. First and foremost, to help raise money in order to keep the charity up and running.  This will enable them to carry on their work!!!!

2. Because i'll be putting in 180 hours of training over 5 months, 14 hours in some weeks, which takes it's toll on me; Physically, mentally and socially.

3. I'll be doing an event that will cover over 140 miles in just 10 - 12 hours.  Thats a 2.4 mile swim, 112 mile cycle and 26.2 mile run.  Come on it ain't easy is it!!!!!

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: CMT United Kingdom gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

Donation summary

Total
£795.00
+ £176.28 Gift Aid
Online
£795.00
Offline
£0.00

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