My story

Thanks for taking the time to visit my JustGiving page.

Having completed two half marathons, this May I will be running my first full length race at the Edinburgh Marathon.

My aim is to raise money for Cystinosis Foundation of the UK, an organisation that helps people with Cystinosis and funds medical research for better medicines. At one year and two weeks of age, my son Zac was diagnosed with this condition. It has been a long road, but he is now eleven. Cystinosis has had a profund affect on him and will do all his life. The medicinal regime takes up a lot of every day, any improvement would be helpfull.

So, please give a donation to the worthy cause. Thanks.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My charity

Cystinosis Foundation UK

Cystinosis Foundation UK

Charity Registration No. 1074885

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Donations 2

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Donation by kenneth scott on 14/03/12

£1.00

+ £0.25 Gift Aid

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Good luck old son

Donation by john Dorans on 20/01/12

£50.00

+ £12.50 Gift Aid

Donation summary

  • * Online donations$75.94
  • Offline donations$0.00
  • Text donations$1.52
  • Total raised$77.45
  • Gift Aid$19.36

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