My story

Thanks for taking the time to visit my JustGiving page.

Please help me to raise as much money as possible for this charity as it is a very rare disease and does not receive the publicity of other bigger charities.

On the 22nd of April 2012 I will be running the London Marathon in aid of 'GLYCOGEN STORAGE DISEASE'. (AGSD)

My Granddaughter Megan who is 8 was born with Glycogen Storage Disease Type lX.

Most cases of GSD Type IX are from X-linked inheritance and thus affect males only. However, GSD Type IX can be inherited in an autosomal recessive manner, in which case both male and female children of two carriers have a 25% chance of having the disease, Making Megan a very rare case!

If you would like to find out more about GSD, please follow the link on my page!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My charity

Association for Glycogen Storage Disease (UK) Ltd

Association for Glycogen Storage Disease (UK) Ltd

Charity Registration No. 1132271

Support group for people with glycogen storage diseases, very rare genetic disorders of metabolism, and their families. We offer: web site, newsletter, annual conference/workshops, promote understanding of and research into GSDs which are often disabling and life-limiting. http://www.agsd.org.uk

Donations 39

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Well done Dave from Terry and Lola xx

Donation by Terry & Lola on 04/05/12

£15.00

+ £3.75 Gift Aid

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well done Dave from Pat x

Donation by Pat Mooson on 29/04/12

£5.00

+ £1.25 Gift Aid

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Well done done Dave, from Gary & family

Donation by Gary on 26/04/12

£5.00

+ £1.25 Gift Aid

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Congratulations :)

Donation by Marathon Spectator on 25/04/12

£5.00

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Well done with love from Bob and Joan x

Donation by Bob & Joan on 23/04/12

£20.00

+ £5.00 Gift Aid

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Sorry it's late - I hope the run went well. All the Best, Steve Wood at Quipsound

Donation by Steve Wood on 22/04/12

£5.00

+ £1.25 Gift Aid

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sorry its a bit late.. computer keeps saying NO.. good luck. stu & Jodey xxxxx

Donation by Jodey Bicknell & stuart bicknell on 22/04/12

£20.00

+ £5.00 Gift Aid

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Hi Dave, good luck on the run. Thinking of you! Love from Denise, Martin, Seb & Josh xxxx

Donation by Martin Leggett on 22/04/12

£50.00

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Hope the weather keeps fine, good luck, love from Joy xx

Donation by Joy Baker on 21/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck Dave from everyone who has donated at Quipsound. You are amazing. Go, Go Go xxxxxxxxxxxxx

Donation by Alison Kingston on 21/04/12

£80.00

+ £20.00 Gift Aid

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Good luck for tomorrow, love from Eileen xx

Donation by Eileen Ott on 21/04/12

£10.00

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Good luck for tomorrow, love from Jill & Geoff xx

Donation by David Villiers on 21/04/12

£30.00

+ £7.50 Gift Aid

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Very best of luck David

Donation by Vaughan Tyrell on 20/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Dave, from June (Jan's friend) x

Donation by June Harris on 20/04/12

£10.00

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Good luck!

Donation by Alistair Crawford on 20/04/12

£20.00

+ £5.00 Gift Aid

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The Very best of luck for Sundays run

Donation by Stephen Trappitt on 20/04/12

£10.00

+ £2.50 Gift Aid

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Pleased to know that there are still some of the old Villiers on the road.

Donation by Allan Reid on 20/04/12

£10.00

+ £2.50 Gift Aid

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Hi Dave We wish you al the best for your run on Sunday, I know you family will be very proud of you as we are GOOD LUCK Ange & Pete xx

Donation by Angela Crittall on 20/04/12

£100.00

+ £25.00 Gift Aid

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All the best Lord Villiers. I want to know how long it takes and the whole family will be routing touting for you. The saunders Family.

Donation by Chris Saunders on 20/04/12

£50.00

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Best of luck Dave. Sean

Donation by Sean Cosens on 20/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Dave, from Jan :-)

Donation by Janet Barber-ross on 19/04/12

£20.00

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good luck x

Donation by charlotte gould on 19/04/12

£10.00

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Good luck dad we love you so much... All our love Gem, Aaron, Joshua and Ralph xxxxxxxx

Donation by Gemma Villiers on 19/04/12

£10.00

+ £2.50 Gift Aid

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ALL THE BEST WISHES TO YOU DAVE LOVE CAROLE AND BRIAN XXX

Donation by carole clark on 13/04/12

£20.00

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Good Luck Dave. Pat and Peter Hopgood

Donation by Patricia Hopgood on 31/03/12

£20.00

Donation summary

  • * Online donations£831.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£831.00
  • Gift Aid£156.50

* Charities pay a small fee for our service. Find out how much it is and what we do for it.