Neil Kelsall is fundraising for UNIQUE (Rare Chromosome Disorder Support Group)

BUPA London 10k for Unique

Virgin London Marathon 2010

on 25/04/2010

"Tiny T"

Photos (1)

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Raising money for

UNIQUE (Rare Chromosome Disorder Support Group)

Charity Registration No. 1110661

Unique provides information and support to individuals affected by rare chromosome disorders, their families and the medical and other professionals working with them. Rare chromosome disorders are lifelong conditions, often causing severe physical and learning disabilities and complex health issues. They affect at least 1 in 200 live-born babies. Most will be dependent on their carers for the duration of their lives, many unable to walk, feed themselves or communicate their needs. The disorders remain very poorly understood and Unique is a place for parents and carers to turn to for help and advice. We help them come to terms with their child’s diagnosis by providing information on hundreds of specific disorders, sensitive support through our Listening Ear service and by linking them with other families living with similar disorders. We also work to raise awareness and disseminate information among the medical and many other professionals involved, aiming to ensure those affected receive the care and support they need in their own communities.

Page owner

Neil Kelsall

RSS

Raised: 202%

Target: £500.00
Raised so far: £1,010.00

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My story

Greetings

As some of you may be aware, our son Thomas has recently been diagnosed as suffering from a rare chromosome disorder which among other things, prevents him from speaking, and from communicating at a level expected of a 5 year-old.

Having gone through 5 years of anguish trying to understand the nature of Thomas' troubles, we are relieved to finally know what causes his problems. The diagnosis also means we are now in contact with a support network of like-minded families going through similar issues to those we face.

Thomas' disorder impacts his speech and his general development, but provides us with the most loving, sweet-natured and humourous little boy imaginable. Not every family will be in such a position.

Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Although we have only recently come to know of Unique, we are sure that they will be a great source of information and support over the coming months. With that in mind, we would like to "put something back in" before we've taken too much out. That's why I've agreed to run in the BUPA 10k race in London on Monday 25th May .... in the vague hope that some of you will overlook your fund-raising fatigue and pay me to put myself through 50 minutes or so of pain.

Please sponsor me if you can.

To find out more about Unique and the amazing support they provide, check out www.rarechromo.org

Finally, I'd like to take the opportunity to thank anyone who does sponsor me and for taking the time to visit this page.

Thank you

Neil

	Well done Neil Donation by Jan and Tony 16/06/09	£10.00 + £2.82 Gift Aid
	Proud parents and Grandparents Donation by DandP Kelsall 28/05/09	£35.00 + £9.87 Gift Aid
	Nice work Neil. So there's still some life left in those legs Donation by Paul J 27/05/09	£25.00 + £7.05 Gift Aid
	well done Donation by Adrian Joyce 26/05/09	£10.00 + £2.82 Gift Aid
	get the ice pack on those knees Donation by Nog 26/05/09	£10.00 + £2.82 Gift Aid
	run forest run Donation by stu 24/05/09	£15.00 + £4.23 Gift Aid
	Good Luck Neil. Donation by 10 Cliftonville 24/05/09	£10.00 + £2.82 Gift Aid
	Good luck! Donation by Winders 22/05/09	£20.00 + £5.64 Gift Aid
	Hope it goes well! Donation by Danielle Lee 22/05/09	£20.00 + £5.64 Gift Aid
	If I sponsor you will you publicly admit that you are a secret Man U fan like you told me in private ;) Good luck! Donation by Mark L 22/05/09	£30.00 + £8.46 Gift Aid
	Under 50 minutes please :-) ... good luck Donation by Salem N 19/05/09	£10.00 + £2.82 Gift Aid
	Will you disconnect me if I'm late with payment??? Donation by Paul Standley 19/05/09	£20.00 + £5.64 Gift Aid
	Donation by Frank K 18/05/09	£10.00 + £2.82 Gift Aid
	Good luck matey! Donation by psycho (Mike) 18/05/09	£10.00 + £2.82 Gift Aid
	This will make up for the derby... Donation by John Waterhouse 14/05/09	£20.00 + £5.64 Gift Aid
	Wot a cracking Dad u r.....good luck mate x Donation by Sarah Leather-Ley 13/05/09	£20.00 + £5.64 Gift Aid
	Bollox to the hope it doesn't hurt too much - I hope it does Donation by Vestinio 13/05/09	£20.00 + £5.64 Gift Aid
	Best of Luck Neil! Donation by Marybeth Walz 13/05/09	£25.00
	Top work NK - hope it doesn't hurt too much Donation by Roderick Tilt 12/05/09	£20.00
	Have a good run. Donation by Ivor 11/05/09	£10.00 + £2.82 Gift Aid
	knees up, knees up, get those knees up! good luck. Donation by Hecquet 11/05/09	£10.00
	Hope Kompany aint running with you- he'll stop at the half way line. Donation by Sponge Bob 08/05/09	£10.00 + £2.82 Gift Aid
	Good luck Neil Donation by James H 08/05/09	£20.00
	Enjoy the run! Donation by Adelheid 08/05/09	£20.00 + £5.64 Gift Aid
	Donation by Jon R 07/05/09	£10.00 + £2.82 Gift Aid
	Good Cause. Best of luck Neil! Donation by James B 07/05/09	£10.00 + £2.82 Gift Aid
	go kelso and a big hi to T born 19th April Donation by sullo 07/05/09	£50.00
	Run Fatboy Run! ;-) Donation by Puskas 07/05/09	£20.00 + £5.64 Gift Aid
	Im sponsering on the promise that you'l sprint the last 200 metres in the style of big phil Donation by Scouse_Blu 06/05/09	£10.00 + £2.82 Gift Aid
	That's your much more important cash target achieved now. Good luck in avoiding the Bid/Billing injury curse! Donation by Julian P 06/05/09	£15.00 + £4.23 Gift Aid

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* Total raised online:	£1,010.00
Offline donations:	£0.00
Gift Aid plus supplement:	£203.08

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Find out how much it is and what we do for it.