Greetings
As some of you may be aware, our son Thomas has recently been diagnosed as suffering from a rare chromosome disorder which among other things, prevents him from speaking, and from communicating at a level expected of a 5 year-old.
Having gone through 5 years of anguish trying to understand the nature of Thomas' troubles, we are relieved to finally know what causes his problems. The diagnosis also means we are now in contact with a support network of like-minded families going through similar issues to those we face.
Thomas' disorder impacts his speech and his general development, but provides us with the most loving, sweet-natured and humourous little boy imaginable. Not every family will be in such a position.
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.
Although we have only recently come to know of Unique, we are sure that they will be a great source of information and support over the coming months. With that in mind, we would like to "put something back in" before we've taken too much out. That's why I've agreed to run in the BUPA 10k race in London on Monday 25th May .... in the vague hope that some of you will overlook your fund-raising fatigue and pay me to put myself through 50 minutes or so of pain.
Please sponsor me if you can.
To find out more about Unique and the amazing support they provide, check out www.rarechromo.org
Finally, I'd like to take the opportunity to thank anyone who does sponsor me and for taking the time to visit this page.
Thank you
Neil
Raised:
202%
Raised so far: £1,010.00
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Well done Neil Donation by Jan and Tony on 16/06/09 |
£10.00 + £2.82 Gift Aid |
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Proud parents and Grandparents Donation by DandP Kelsall on 28/05/09 |
£35.00 + £9.87 Gift Aid |
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Nice work Neil. So there's still some life left in those legs Donation by Paul J on 27/05/09 |
£25.00 + £7.05 Gift Aid |
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well done Donation by Adrian Joyce on 26/05/09 |
£10.00 + £2.82 Gift Aid |
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get the ice pack on those knees Donation by Nog on 26/05/09 |
£10.00 + £2.82 Gift Aid |
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run forest run Donation by stu on 24/05/09 |
£15.00 + £4.23 Gift Aid |
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Good Luck Neil. Donation by 10 Cliftonville on 24/05/09 |
£10.00 + £2.82 Gift Aid |
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Good luck! Donation by Winders on 22/05/09 |
£20.00 + £5.64 Gift Aid |
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Hope it goes well! Donation by Danielle Lee on 22/05/09 |
£20.00 + £5.64 Gift Aid |
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If I sponsor you will you publicly admit that you are a secret Man U fan like you told me in private ;) Good luck! Donation by Mark L on 22/05/09 |
£30.00 + £8.46 Gift Aid |
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Under 50 minutes please :-) ... good luck Donation by Salem N on 19/05/09 |
£10.00 + £2.82 Gift Aid |
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Will you disconnect me if I'm late with payment??? Donation by Paul Standley on 19/05/09 |
£20.00 + £5.64 Gift Aid |
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Donation by Frank K on 18/05/09 |
£10.00 + £2.82 Gift Aid |
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Good luck matey! Donation by psycho (Mike) on 18/05/09 |
£10.00 + £2.82 Gift Aid |
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This will make up for the derby... Donation by John Waterhouse on 14/05/09 |
£20.00 + £5.64 Gift Aid |
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Wot a cracking Dad u r.....good luck mate x Donation by Sarah Leather-Ley on 13/05/09 |
£20.00 + £5.64 Gift Aid |
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Bollox to the hope it doesn't hurt too much - I hope it does Donation by Vestinio on 13/05/09 |
£20.00 + £5.64 Gift Aid |
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Best of Luck Neil! Donation by Marybeth Walz on 13/05/09 |
£25.00 |
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Top work NK - hope it doesn't hurt too much Donation by Roderick Tilt on 12/05/09 |
£20.00 |
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Have a good run. Donation by Ivor on 11/05/09 |
£10.00 + £2.82 Gift Aid |
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knees up, knees up, get those knees up! good luck. Donation by Hecquet on 11/05/09 |
£10.00 |
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Hope Kompany aint running with you- he'll stop at the half way line. Donation by Sponge Bob on 08/05/09 |
£10.00 + £2.82 Gift Aid |
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Good luck Neil Donation by James H on 08/05/09 |
£20.00 |
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Enjoy the run! Donation by Adelheid on 08/05/09 |
£20.00 + £5.64 Gift Aid |
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Donation by Jon R on 07/05/09 |
£10.00 + £2.82 Gift Aid |
| * Total raised online: | £1,010.00 |
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| Offline donations: | £0.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £1,010.00 |
| Gift Aid plus supplement: | £203.08 |
* Charities pay a small fee for our service.
Find out
how much it is and what we do for it.