Philippa Moreno

Philippa's Great North Run 2013

Fundraising for The SMA Trust
£205
raised of £200 target
by 9 supporters
Donations cannot currently be made to this page
In memory of Rowan Macie Poole
The SMA Trust

Verified by JustGiving

RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

I will be running in The Great North Run on the 15th of Sept 2013 in memory of a very special little girl, Rowan Macie Poole. 

Rowan was born with a rare genetic muscle wasting condition called Spinal Muscular Atrophy (SMA).

At just 18 months old on the 23rd November 2012, she peacefully lost her brave fight with SMA, Type 1b. 

SMA is the UK's biggest genetic killer of children under the age of 2 years old. Currently there is no cure.

By running for Rowan, I hope to raise funds and awareness for the SMA Trust, a charity dedicated to funding vital research into finding a cure for SMA.

Thank You for your support

xxx

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About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
£205.00
+ £10.25 Gift Aid
Online donations
£61.00
Offline donations
£144.00

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