Wendy Talbot is fundraising for Batten Disease Family Association

Ryan's Bike Ride

on 04/06/2009

Team Members:
Wendy and Frank, Carol and Alan, Val and Maurice

Four of the six team members in the gym!

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Four of the six team members in the gym!

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Raising money for Batten Disease Family Association

Charity Registration No. 1084908

Batten Disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children and adults worldwide. The BDFA's Vision is to bring light to Batten Disease by being the central point of excellence in the UK for supporting affected families and to facilitate research into the disease.

Page owner

Wendy Talbot

Raised: 195%

Target: £1,500.00
Raised so far: £2,930.50

Donate now

We will be cycling a total of 215 miles on the Trans Pennine Trail on 4th June 2009 for around 5 days to raise awareness of Batten Disease and to raise money for the Batten Disease Family Association.

We know about Batten Disease as our nephew Ryan was diagnosed with juvenile Batten Disease at the age of 7. He started to lose his sight at he age of six and is now totally blind. Ryan has now also started having fits and has had a pacemaker fitted to try to control them. Although it maybe too late to help Ryan recover we know that whatever we raise will be valuable to fund family support and the all important research for a cure for Battens Disease.

So thank you for visiting our fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Batten Disease Family Association gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor us now!

	Good luck on your epic trip, best wishes from all at academy lifts. Donation by Mark Stapleton on 26/06/09	£200.00
	Donation by Anonymous on 26/06/09	£20.00 + £5.64 Gift Aid
	good luck Donation by david thompson on 06/06/09	£40.00 + £11.28 Gift Aid
	Good Luck Donation by HFL Building Solutions on 27/05/09	£100.00
	Hope youv'e all got padded seats!! Good luck and best wishes Donation by Janet and Plattsy on 17/05/09	£25.00 + £7.05 Gift Aid
	Hope the training is going well. I know what you are going through!!!! Good Luck Donation by Benny & Toni on 06/05/09	£10.00 + £2.82 Gift Aid
	Good luck to you all. Donation by Dawn Ibbs on 06/05/09	£20.00 + £5.64 Gift Aid
	Good luck & have a wonderful day you must be mad. Donation by Joan & Vic on 05/05/09	£10.00
	Just go for it, Frankie Bfd City Donation by Catherine,Jake and Rachel. Northern Ireland on 12/04/09	£20.00
	Good Luck from across the Pennines xx Donation by Phil & Maureen on 03/04/09	£20.00 + £5.64 Gift Aid
	Wish it could be more/Bulls on a bike that we'd like to see Donation by Sue & Wayne on 01/04/09	£10.00
	rather you than us biking all that way!! Donation by Branca & Colin on 01/04/09	£50.00 + £14.10 Gift Aid
	Good luck to you and safe journey Donation by William Bullivant-Aston Villa on 31/03/09	£5.00
	Good luck and safe journey Donation by Marie & Pauline - County Down on 31/03/09	£20.00
	Make sure you have one of those special seats, Oh, I can feel the pain now Donation by Jim and Pauline on 30/03/09	£20.00 + £5.64 Gift Aid
	Good luck - your crazy Donation by Big John In Spain on 23/03/09	£5.00
	Good Luck Frank, are you sure you can reach the pedals! Donation by Paul, Claire, Lucy & Sophie Allman on 16/03/09	£20.00 + £5.64 Gift Aid
	Good Luck, Keep on pedalling Donation by Britannia Stores-Spain on 13/03/09	£35.50
	You are more active now than when you were working...UP THE BANTAMS!!! Donation by Marc, Louise, Harry & George on 13/03/09	£50.00 + £14.10 Gift Aid
	Birthday Party Donation Donation by Monica - Spain on 04/02/09	£80.00
	good luck - pedal pushers! Donation by Judith(Fran's mum) Biggin on 03/02/09	£5.00 + £1.41 Gift Aid
	GO WENDY AND FRANK (the red and blues!) YOU CAN DO IT!!! xxx Donation by Fran on 06/01/09	£10.00
	Donation by Mo & Bal on 27/12/08	£20.00 + £5.64 Gift Aid
	Good Luck on your bike ride (nutters!) Donation by Seamus O'Bierne on 27/12/08	£50.00 + £14.10 Gift Aid
	Mince Pie & Mulled Wine Party Donation by Val & Maurice on 27/12/08	£85.00 + £23.97 Gift Aid

Donate now

* Total raised online:	£930.50
Offline donations:	£2,000.00
Mobile donations:	£0.00
Total Raised:	£2,930.50
Gift Aid plus supplement:	£122.69

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.

Ryan's Bike Ride

Raising money for Batten Disease Family Association

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