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Thankyou for visiting my JustGiving page for CYSTIC FIBROSIS
WOOOOOOHOOOOOOO I DID IT!!!!!! ON OCTOBER 17TH I RAN 13.1 MILES FOR CYSTIC FIBROSIS.......THANK YOU ALL SO MUCH FOR YOUR SPONSORS AND SUPPORT, AND IT'S STILL NOT TOO LATE TO DONATE XXX
The current average life expectancy for someone with CF is 38, SADLY ONLY HALF OF THOSE LIVING WITH CYSTIC FIBROSIS REACH THAT AGE......IT CLAIMS 3 YOUNG LIVES EVERY WEEK!!!
This is a unique opportunity to directly help many young people in need of alot of support: that is the thousands of people bravely fighting Cystic Fibrosis. Cystic fibrosis (CF) is a devastating genetic disease that affects thousands of children and young adults in the United Kingdom, and worldwide. Research and care supported by the Cystic Fibrosis Trust is making a huge difference in extending the quality of life for those with CF. However, we continue to lose precious lives to CF every day. That is why your help is needed now more than ever to ensure that a cure is found sooner - rather than later.
My son Ronnie who is 12 was diagnosed with CF at 6 months old . He has been in and out of hospital his entire life, enduring endless medical proceedures, operations and aggressive treatments. When not in hospital Ronnie takes over 30 pills everyday to try and keep him well. On top of Ronnie's medications is the twice daily 30 minute regime of chest physiotherapy plus inhalers and nebulizers to try and keep his lungs clear so he can try and breath easy. On top of all that, Ronnie needs nightly high calorie liquid feeds which he has while he's asleep via a pump which is connected to a permanent tube in his stomach, he needs this plus special drinks in the day because Ronnie struggles to gain any weight, another CF related problem. That is home life!! Ronnie also has regular aggressive treatments in hospital to endure ....... Something as simple as a cold can put Ronnie in hospital and cause permanent lung damage........... This gives you a small insight as to what it's like living with CF we are constantly trying to keep one step ahead of this awfull disease.
This is where YOUR help comes in. The CF Trust work tirelessly to advance the treatments given and really feel they are on the brink of a CURE but all this is totally reliant on donations. PLEASE DONATE ANYTHING YOU CAN to help save the lives of all those fighting Cystic Fibrosis
Now i don't expect you to do this for nothing!!! so to encourage you i am running and walking in several different events throughout 2010 so far i have run a 8K race on the 3rd May an 8K walk over the severn bridge on the 23rd May a 10K race on the 30th May and a 9 mile relay team on the 14th July. This is all building up to the Cardiff half marathon 13.1 mile race on the 17th October. To make this even more of a challenge i have never done anything like this before, the last time i ran in an event was at school!!!! I have been training hard and have gone from not being able to run for 1 minute to now training many miles a week for the half marathon.
"OURS WOULD BE A DIFFERENT STORY IF IT WASN'T FOR THE CYSTIC FIBROSIS TRUST"
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
Below is a list of VERY special people who have already donated to support me. Thank you to everyone for your amazing support xxx