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sarah liveseys page

Sarah Livesey is raising money for Reverse Rett
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BUPA Great Manchester Run 2012 · 20 May 2012 ·

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Im running for Rett Syndrome Research Trust UK. Retts syndrome is a neurological disorder caused by a faulty gene which mainly effects girls. It can be a horrendously debilitating disorder leaving sufferers unable to walk,talk or eat properly,it can cause breathing difficulties,seizures,heart problems and sadly in too many cases sudden and unexplained death. To date there is no cure, however research shows that one day the condition maybe reversed. So please donate as generously as you feel able to this my chosen charity. I have 2 friends who understand only to well the importance of research into this disorder and for them i will be running in the memory of Kelly Marie and raising money for the hope of a brighter future for little Aimee and others like her. xx Thanks for taking the time to visit my JustGiving page.

Donation summary

Total
£229.13
+ £30.03 Gift Aid
Online
£136.13
Offline
£93.00

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