Tony Ackroyd is fundraising for Action Duchenne

Edward Ackroyd's Fundraising Page

Edward Ackroyd age 5

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Raising money for

Action Duchenne

Charity Registration No. 1101971

Action Duchenne is a national charity that aims to find a cure for Duchenne, a severe genetic muscle wasting disease. The condition affects mainly boys and without treatment most of these young men are completely paralysed by their early teens and die by their late teens or early 20s. To ensure we do not lose another generation of young people to this terrible disease we need more funding for research and treatment.

Page owner

Tony Ackroyd

Page closes

04/06/2010

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Raised so far: £5,627.67

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My story

Edward Ackroyd is five years old ( 6 in October) and has Duchenne Muscular Dystrophy, which is a severe muscle wasting disease, which leads to paralysis and limited life expectancy. Nearly all of those affected are boys, who are likely to be using wheelchairs by the age of ten through the progressive loss of muscle function, and needing full time care by their late teens.

Surviving beyond their teenage years is rare. Duchenne Muscular Dystrophy affects 1 in every 3,500 boys just like Edward, and occasionally little girls also. With 40,000 sufferers worldwide, awareness of DMD is very low, which made the diagnosis particularly shocking for Edward's parents, Heidy and Paul, and is a devastating reality for all Duchenne boys.

In order to help Edward and others like him, we have recorded a song called 'Never Say Goodbye' written by Shane Hamill and Paul Lovatt Cooper, and sung by Shane. If you haven't already, please visit www.sayhellotoedward.com

You can view this music video produced by some of Edward's incredible friends as well as keping up to date with our campaign. Please spread the word about us, and send all of your friends to www.sayhellotoedward.com

From Edward, his brothers Samuel & Thomas, his devoted parents Heidy & Paul, and all of Edward's friends, thank you.'

FORTHCOMING EVENTS

Dinner and Disco at the White Hart Hotel on the 7th December 2009. All welcome, but limited numbers. Tickets £35 per person.

Apply to Susan Ackroyd susan.ackroyd1@btinternet.com

Thank you for visiting my fundraising page.

http://tempuri.org/tempuri.html

Donating through Justgiving is quick, easy and totally secure. It's also the most efficient way to sponsor me: ACTION DUCHENNE gets your money faster and, if you're a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

	We'll keep thinking of you, Edward! Donation by Peter Titchmarsh 03/11/09	£25.00 + £7.05 Gift Aid
	The results of a misdirected email!!!! Donation by Roger Wild 02/11/09
	Sing for PLEASURE Choir - sale of CDs - total now £720, awesome! Donation by Susan Ackroyd 01/10/09	£110.00
	With love and aching muscles from Mr and Mrs Forrest Gump!xx Donation by alison labrey 25/07/09	£520.00 + £146.67 Gift Aid
	from Elvis,Elvis,Elvis,Elvis,Elvis,Elvis,Elvis,Elvis,Elvis and a bunch of drunken sailors.x Donation by alison labrey 25/07/09	£411.85 + £116.16 Gift Aid
	Lots of Love for a bright future, keep your hopes high. xxxx Donation by lynnewivanee 05/07/09
	Sing for PLEASURE Choir - sale of CDs - total now £610, Fantastic! Donation by SMA 03/06/09	£30.00
	More from Tracy's bash, many thanks. Fantastic total now £610.75 Donation by SMA 13/05/09	£10.00
	More from Tracy's bash +offline cheque.. Total now £600.75. Thank you. Donation by SMA 29/04/09	£20.00
	Tracy's birthday bash! (£570.75 with offline donations). Thank you so much from all Edward's family. Donation by SMA 27/04/09	£535.75
	CD Sales: SING FOR PLEASURE choir. Many, many thanks to all involved from Edward's family. (£580 total donated now) Donation by SMA 23/04/09	£240.00
	sent with love Donation by yoga class 21/04/09	£100.00
	It's not much, but I hope it helps. Good luck Edward. Donation by Robert Bottomley 15/04/09	£15.00 + £4.23 Gift Aid
	Well done Edward you are sending cheerful message to everyone. Good Luck Donation by Pat Griffiths 30/03/09	£20.00 + £5.64 Gift Aid
	Such a lovely little boy, I hope this helps towards finding a cure. xxx Donation by Jean Cookson 27/03/09	£5.00 + £1.41 Gift Aid
	It's not much but I hope it goes some way to making life easier for a sweet little boy. Donation by Lisa Foster Thorn 01/03/09	£10.00 + £2.82 Gift Aid
	Edward's site is really informative. We liked it very much. Donation by Stephanie Bland's Mum&Dad 27/02/09	£50.00 + £14.10 Gift Aid
	Doreen & Paul Wild's 60th Party raised £270 (£125 sent direct). Thank you so much. Happy Birthday. x Donation by SMA 25/02/09	£145.00
	Many thanks for our Xmas present, John, Silvia, Johnny & Susan.. we've put it to a good cause, love to you all. x x x Donation by Susan & Tony Ackroyd 24/02/09	£50.00 + £14.10 Gift Aid
	Get well soon, Carole Donation by SMA 24/02/09	£2.00
	Kath & Ken Flanagan of Redcar.. thank you so much Donation by SMA 24/02/09	£100.00
	Thank you to Peter Hawksworth, taxi driver Donation by SMA 08/02/09	£31.50
	saving small change! Donation by SMA 08/02/09	£14.35 + £4.05 Gift Aid
	SING for PLEASURE Choir - sale of CDs - total now £340 Donation by SMA 08/02/09	£15.00
	Many thanks to Geoff Archer (Sing for Pleasure Choir) Donation by SMA 08/02/09	£10.00
	Donation by Anon 06/02/09	£5.00 + £1.41 Gift Aid
	good luck edward Donation by Alan breakwell 26/01/09	£20.00 + £5.64 Gift Aid
	Praying a cure is found. Donation by Ayesha Nayyar 14/01/09	£20.00 + £5.64 Gift Aid
	xxxxx Donation by Bex Paterson 12/01/09	£15.00 + £4.23 Gift Aid
	With best wishes from Rob Plummer's "southern" family! Donation by Lindsay Ransome 05/01/09	£10.00 + £2.82 Gift Aid

Donate now

* Total raised online:	£4,781.67
Offline donations:	£846.00
Gift Aid plus supplement:	£673.60

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