Raised: 112%
 
Target: £6,000.00
Raised so far: £6,744.67
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EDWARD NEEDS YOUR HELP. 

Edward Ackroyd is eight years old  and has Duchenne Muscular Dystrophy, which is a severe muscle wasting disease, which leads to paralysis and limited life expectancy. Nearly all of those affected are boys, who are likely to be using wheelchairs by the age of ten through the progressive loss of muscle function, and needing full time care by their late teens.

Surviving beyond their teenage years is rare. Duchenne Muscular Dystrophy affects 1 in every 3,500 boys just like Edward, and occasionally little girls also. With 40,000 sufferers worldwide, awareness of DMD is very low, which made the diagnosis particularly shocking for Edward's parents, Heidy and Paul, and is a devastating reality for all Duchenne boys.

In order to help Edward and others like him, we have recorded a song called 'Never Say Goodbye' written by Shane Hamill and Paul Lovatt Cooper, and sung by Shane.

From Edward, his brothers Samuel & Thomas, his devoted parents Heidy & Paul, and all of Edward's friends, thank you.

Thank you for visiting my fundraising page.


http://tempuri.org/tempuri.html


Donating through Justgiving is quick, easy and totally secure. It's also the most efficient way to sponsor me: ACTION DUCHENNE gets your money faster and, if you're a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

Hugs n Kisses to a brave little Boy .You are our future Donation by Evelyn Bootle on 10/12/08

 
£5.00 + £1.41 Gift Aid

You may be a boy but you have the courage of 1000 men! all the best x Donation by John Buckels on 09/12/08

 
£20.00 + £5.64 Gift Aid

Edward, you are a true inspiration - take care and good luck x Donation by Dave Childs on 09/12/08

 
£50.00 + £14.10 Gift Aid

You're a super star little man! keep your smile! :) Donation by deb on 09/12/08

 
£20.00 + £5.64 Gift Aid

All the best for christmas and 2009 Donation by Mark eastham on 09/12/08

 
£10.00 + £2.82 Gift Aid

Hope a cure comes about soon. Good luck. Donation by k@40 on 09/12/08

 
£10.00

hope a cure can be found soon Donation by ALAN BREAKWELL on 09/12/08

 
£20.00 + £5.64 Gift Aid

Donation by marc rothwell on 09/12/08

 
£4.00

Best wishes Donation by S Lee on 09/12/08

 
£30.00 + £8.46 Gift Aid

You stick it out little fella x Donation by Lee Carus on 09/12/08

 
£20.00 + £5.64 Gift Aid

good luck to a good cause Donation by effjbee on 09/12/08

 
£10.00 + £2.82 Gift Aid

Donation by Dave Gorner on 09/12/08

 
£5.00 + £1.41 Gift Aid

LOVE the song-hope it's a hit! Donation by Jill on 08/12/08

 
£20.00

C/0 Neil Beeforth Donation by Leanne Aston on 08/12/08

 
£2.00 + £0.56 Gift Aid

Hope this small donation helps. Donation by Sue Craven on 08/12/08

 
£5.00 + £1.41 Gift Aid

I wish you great success in your endeavours Donation by Stuart Green on 07/12/08

 
£20.00 + £5.64 Gift Aid

Many thanks to Chris Cyprus, celebrated artist as seen on Gardener's World Donation by SMA on 05/12/08

 
£75.00

..thank you to Travis' grandma ('Seeds') Donation by SMA on 05/12/08

 
£5.00

..kindly donated by Joan (Sing for Pleasure) Donation by SMA on 04/12/08

 
£5.00
Donate now
 
* Total raised online: £5,898.67
  Offline donations: £846.00
  Mobile donations: £0.00
  Total Raised: £6,744.67
  Gift Aid plus supplement: £810.68

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