Imagine been told your 4 year old child has a muscle wasting disease that you have never heard of before. Imagine been told this disease will ensure your child will be in a wheel chair by the time they are 10 - 12 years old and the nature of the disease will result in you outliving your child as they may not reach their early twentys.

This is what we were told about our son, Arryn, when he was 4 and a half years old. We were advised that no cure was available and steriods would need to be used to try and keep him on his feet as long as possible.

He is now 9 years old and is in a wheel chair fulltime. There still is no cure but work in the background with clinical trials are been held, however money is required to ensure these trials continue.

So to help raise funds to ensure that these trials can continue with the hope of finding a cure, I will be looking to face danger in the face with a smile just like our son. My danger will be 26 stone in weight, have razor sharp teeth and be over 10ft long. Yes, I will be DIVING WITH SHARKS!!!

This dive will be held at Deep-Sea World in Fife, Scotland on Saturday 23rd August 2008. Please help in raising funds.Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Action Duchenne gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me and if Jaws does not get to angry hopefully I will get the chance to thank you!