Raised: 94%
Target: £5,000.00
Raised so far: £4,681.20
Donate now

My story

 

Thank you for visiting my fundraising page. Please dig deep and sponsor me online.

As a member of Wesham Road Runners I am in full training to take part in the London Marathon on 22 April 2007 and the Brathey Windermere Marathon on 20 May 2007.

My daughter Emily-May has been diagnosed with a condition called Sotos Syndrome.  It is a genetic condition that causes rapid growth in early life but is also connectd to slowness to crawl, walk and talk.  The problem is muscle tone, but as that improves everything comes back to normal.  However some children are not so lucky and the rapid advancement in physical nature affects their entire lives.    Sotos is a rare condition and 1 in 10,000 new born babies are affected, but until further research into the condition is carried out that figure may grow.

We are thankful to Blenheim House, Blackpool and Alder Hey Childrens Hospital for all the care, help and advice given to us and Emily-May

 From donating on this site you will see that the money raised will go to the Institute of Cancer Research.  It is under this umbrella that research into Sotos Syndrome is being carried out. The research team is led by Dr Nazeen Rahman and the monies raised, although donated to the Institute of Cancer Research, will be earmarked for Sotos Syndrome.


Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: The Institute of Cancer Research & Everyman will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor me now!

Many thanks for your support.

Fantastic effort for a worthy cause. Donation by chazzle 10/06/07  

£10.00 + £2.82 Gift Aid

I'm paying by the mile so I waited to see if you finished! Much respect, Simon. Donation by Gary de Banke 09/05/07  

£26.20 + £7.39 Gift Aid

Well done, best wishes to you all Donation by Sandra and Brian Alderson 22/04/07  

£5.00 + £1.41 Gift Aid

Good luck with both runs and the fund raising Donation by Richard 18/04/07  

£10.00 + £2.82 Gift Aid

Good Luck Simon, and I love those yellow jumpers that the girls are wearing! Donation by Yvonne Russell 30/03/07  

£20.00 + £5.64 Gift Aid

see you there! Donation by Steve Myerscough 27/03/07  

£10.00 + £2.82 Gift Aid

Good Luck-Hope it goes well Donation by Nardo & Gail 27/03/07  

£100.00 + £28.21 Gift Aid

Good luck with your Marathons Donation by Chris Bell 17/03/07  

£10.00

Mate im right next to you let us bring it on Donation by chester 18/02/07  

£10.00 + £2.82 Gift Aid

good luck Simon for both events Donation by lesward 17/02/07  

£20.00 + £5.64 Gift Aid

Good luck Simon Donation by Susan Smith 12/02/07  

£10.00

Good luck Simon. Happy running for a very worthy cause. Donation by Colin and Carole-Anne Hirst 10/02/07  

£10.00 + £2.82 Gift Aid

My 5 year old son has sotos syndrome, so thank you for doing this. Donation by camsmum 09/02/07  

£10.00 + £2.82 Gift Aid

Good luck Simon if you need any marathon advice dont ask me! Donation by George Kennedy 09/02/07  

£20.00 + £5.64 Gift Aid

Good luck! My son Luke is 5 and Sotos like, and we wish you all the best! Donation by Matt Sears, Worcester 09/02/07  

£10.00 + £2.82 Gift Aid

Good luck with the marathon training. All for a very good cause. Donation by Jacqui Kilsby-Dukes 09/02/07  

£10.00 + £2.82 Gift Aid

Good Luck with both marathons Simon. We wish you every success. Donation by Brenda & Peter Earnshaw 09/02/07  

£20.00
Donate now
 
* Total raised online: £311.20
  Offline donations: £4,370.00
  Gift Aid plus supplement: £76.49

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Find out how much it is and what we do for it.