Raised: 34%
Target: £3,000.00
Raised so far: £1,007.50
Donate now

My story

 

Thank you for visiting my fundraising page. Please dig deep and sponsor me online.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Cornelia de Lange Syndrome Foundation UK will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

The reason I have decided to set up this page is a very close friend of mine has found out her son has cdls and we want to do all we can to raise funds for research and to help aid prompt diagnosis for the syndrome. Sonny, her little boy is a gorgeous happy little baby and with your help, we can help raise money to raise awareness, promote research into the condition and help other children and their parents who are affected by this genetic disorder.

So please sponsor me now!

Many thanks for your support.

Have been reading your diary on Vox, best of luck, Vicola (from Vox) Donation by Vicola 07/09/07  

£7.50 + £2.12 Gift Aid

Donation by Rob Hornbuckle 02/09/07  

£60.00 + £16.92 Gift Aid

Best wishes & much love. Donation by Street Vein 31/08/07  

£20.00

From tall-rich @ Vox Donation by Richard Gillin 28/08/07  

£25.00 + £7.05 Gift Aid

Been reading your darling S's story all night...xxxx to you all! Donation by Caprica 01/07/07  

£10.00

All the best Donation by Chas Spencer 22/06/07  

£5.00 + £1.41 Gift Aid

Here's hoping this makes your day a little brighter. Donation by Berk & Jenn 20/06/07  

£20.00

Good luck and love xxx Donation by Jodi's big sister 19/06/07  

£50.00 + £14.10 Gift Aid

With lots of hugs & sparkley smiles Donation by Katkin & Pops 19/06/07  

£10.00 + £2.82 Gift Aid

Donation by Stuart BR 19/06/07  

£20.00 + £5.64 Gift Aid

kisses to you sonny! Donation by mindy 14/06/07  

£20.00

Donation by Staff at Pentwyn school, Clyro. 26/05/07  

£30.00

Keep on shining Sonny, Mandy, Robert & Abi Donation by Mandy 22/01/07  

£5.00 + £1.41 Gift Aid

For Sonny from Toby...(sorry it took so long - had to wait till mat allowance started!) Donation by Sally and the Edwards family 21/01/07  

£10.00

with love to you all :0) Donation by bec 15/01/07  

£5.00 + £1.41 Gift Aid

With lots of love xxx Donation by Clareok 09/12/06  

£20.00 + £5.64 Gift Aid

Best wishes from Dave to Sonny Donation by Dave Smith 29/11/06  

£10.00 + £2.82 Gift Aid

Sorry it's taken so long! Red, Mr Red, Lydia and bump xxxx Donation by Red 29/11/06  

£20.00 + £5.64 Gift Aid

Good luck to you. Donation by Mervyn Cross - och aye the noo 29/11/06  

£10.00 + £2.82 Gift Aid

Best of luck from North Wales Donation by Ifan from Bangor aye 29/11/06  

£10.00

Lotsaluv from Aunty Sam, Uncle Gary, Jim & Simon xxxxxxxxx Donation by The Morgans 23/11/06  

£20.00 + £5.64 Gift Aid

Donation by Katae 23/11/06  

£10.00 + £2.82 Gift Aid

:o) Donation by Esther Gradwell 04/11/06  

£7.50 + £2.12 Gift Aid

happy to help sonny, love from anna and steve x Donation by anna 03/11/06  

£10.00 + £2.82 Gift Aid

Kell, sorry it's not more. xxx Donation by Sue W 03/11/06  

£7.50 + £2.12 Gift Aid

Donation by Griff 02/11/06  

£25.00 + £7.05 Gift Aid

Yay to Sonny Sunshine, big hugs from Vicki, Gareth & your li'l buddy Riley XXX Donation by Vicki 30/10/06  

£10.00 + £2.82 Gift Aid

Kell, sorry I can't donate more. Hope it helps. Take care, hugs to Sonny. Julie xx Donation by Julie 29/10/06  

£20.00 + £5.64 Gift Aid

We love you cheeky boy!! Donation by Uncle Nick and Uncle Ryan 29/10/06  

£50.00 + £14.10 Gift Aid

Donation by Zoe Veitch 25/10/06  

£10.00 + £2.82 Gift Aid
Donate now
 
* Total raised online: £1,007.50
  Offline donations: £0.00
  Gift Aid plus supplement: £230.58

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Find out how much it is and what we do for it.