My story

Thanks for taking the time to visit our JustGiving page.

Loz and myself are determined to raise £10,000 by cycling 875 miles from John 'O' Groats to Lands End in 7 days AND running the London Marathon the following day. We will be commencing on the 15th of April at John 'O' Groats, cycling up to 150 miles a day in order to reach Lands End by the evening of the 21st. We will then be travelling overnight to London for the marathon on the 22nd April.

Quite sensibly, you may ask why!! We are embarking on this behemoth of a journey in order to raise much needed funds for one of the most worthy charities in the UK, Debra. They carry out research and offer support to families suffering from 'one of the worst diseases you've never heard of'; Epidermolysis Bullosa (EB).

EB is a genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.

The whole body can be affected both internally and externally with wounds healing very slowly, giving rise to scarring, physical deformity and significant disability. Even the simplest of tasks such as eating, drinking and the disposal of bodily waste are incredibly painful. Malnutrition is often a consequence, further reducing the body's resistance to infection.

People with severe types of EB also have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy and as yet there is no effective treatment or cure.

How can you help?

£25 could pay for one hour of research to find a treatment for EB

£50 could fund two additional home visits, which is critical for those finding it difficult or impossible to travel

£100 could pay for an essential changing unit required during the frequent and lengthy dressing changes

£300 means a family could enjoy a week's holiday in one of DebRA's specially adapted holiday homes

£10,000 is a large amount of money to raise and we would love as many people to be a part of this journey as possible. We welcome not just your generous donations but any of your own fundraising ideas and precious time to help achieve our target.  

If you would like to find out more, please visit

http://www.debra.org.uk/index.php?page=publications

Thank you in advance for your generous donation and please feel free to come along and cheer us on either on our way to Lands End or in London. We will be uploading our cycle route soon so watch this space!

My charity

DEBRA

DEBRA

Charity Registration No. 1084958

DEBRA helps families affected by EB (Epidermolysis Bullosa), a genetic condition which causes the skin to blister and shear at the slightest friction. DEBRA provides a team of nurses and social care staff to work with families affected by EB and commissions world-leading research into the condition.

Donations 75

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A huge thank you to all at Roxton

Donation by Laurence Whiting on 22/05/12

£85.00

+ £21.25 Gift Aid

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Well done guys, amazing job, can't wait to see any video you have of it.

Donation by Ray & Lou on 13/05/12

£100.00

+ £25.00 Gift Aid

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Amazing achievement! Well done! x

Donation by Sinead Wallace on 27/04/12

£20.00

+ £5.00 Gift Aid

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Well done lads, an incredible achievement.

Donation by Tony Bartlett ( Physio ) on 23/04/12

£30.00

+ £7.50 Gift Aid

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Amazing effort guys!

Donation by Song Smith on 23/04/12

£20.00

+ £5.00 Gift Aid

Congratulations. What an amazing achievement. Well done. Loved the photo of you both at the tube station, it said it all xx

Donation by Steve & Cath Baker on 23/04/12

£120.00

+ £30.00 Gift Aid

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Guys, well done on such an epic challenge. Pure craziness!!

Donation by Nicola Hoar on 22/04/12

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 22/04/12

£5.00

+ £1.25 Gift Aid

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Jon and Vi told me about your epic challenge so this is to help a bit. Congratulations on your fine achievement and good luck for tomorrow's marathon

Donation by Peter Crumpler on 21/04/12

£20.00

+ £5.00 Gift Aid

Donation by Felicity Garrard on 21/04/12

£25.00

+ £6.25 Gift Aid

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Wow! What an achievement! Well done guys I will keep an eye open for you tomorrow. Tegs x

Donation by Terri Warren on 21/04/12

£25.00

+ £6.25 Gift Aid

Donation by Anonymous on 18/04/12

£15.00

+ £3.75 Gift Aid

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good luck guys, what you are doing is amazing!!

Donation by lisa oakley on 17/04/12

£30.00

+ £7.50 Gift Aid

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Congratulations on achieving 1st leg of JOG LE. Good luck with rest of cycle and the Marathon. We have a lot of admiration for what you're both doing.

Donation by Carol, Bob and Jock/Bracadale B&B on 16/04/12

£20.00

+ £5.00 Gift Aid

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Good luck fellas!!

Donation by Oliver Dunn on 14/04/12

£25.00

+ £6.25 Gift Aid

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Good luck bro'

Donation by Maddie P. on 12/04/12

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Good wishes from Bletchley, not on your route but please say Hi to Kendal as you pass through. The mintcake is delicious and energy giving!

Donation by Prudence Hewitson on 10/04/12

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Good luck, take care.

Donation by Barb and Ian Whiting on 06/04/12

£200.00

+ £50.00 Gift Aid

Donation by Simon Dunn on 05/04/12

£50.00

+ £12.50 Gift Aid

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Good luck guys, fantastic charity. Loz no pointing at pot holes.

Donation by Grant & Mary on 04/04/12

£130.00

+ £32.50 Gift Aid

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Will be thinking of you and your driver! What an amazing undertaking. We wish you the very best of everything along the way.

Donation by Prue and Peter Hewitson on 02/04/12

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This is epic!!! I will be there in London on the final day and will hopefully spot you to cheer you on!! Good luck lads!!! xxx

Donation by Gemma Sullivan on 01/04/12

£30.00

+ £7.50 Gift Aid

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Donation by Laurence Whiting on 31/03/12

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Your mental!!

Donation by Sophie Lowden on 31/03/12

£50.00

+ £12.50 Gift Aid

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all the best guys. great day today

Donation by john eaton on 30/03/12

Donation summary

  • * Online donations£4,916.50
  • Offline donations£2,196.82
  • Text donations£0.00
  • Total raised£7,113.32
  • Gift Aid£1,076.63

* Charities pay a small fee for our service. Find out how much it is and what we do for it.