My story

Thanks for taking the time to visit Susan Jane Potter's memorial page. 

My dear friend Mary-Lou's beautiful and lovely mum passed away on 26th March 2012 after suffering a short and unexpected illness called CJD.

Sue was a wonderful mum and grandmother and will be very sadly missed by her many close friends and colleagues as well as family.

All donations made here will go to the CJD Support Network.  CJD or Creutzfeldt-Jakob Disease (sometimes known as Jakob-Creutzfeldt Disease) is one of a group of rare brain disorders known as prion diseases which occur both in humans and certain animals. The infectious agent, or prion, attacks the brain, killing cells. Gaps in brain tissue develop, giving the brain a characteristic sponge-like appearance under the microscope.

The cause is unknown. It mainly affects the over 50s and has a sudden onset. The course of the disease is measured in months.

 

Prions may exist in the body for many years before symptoms begin, but death may then result within a year. CJD usually attacks people over the age of 55.

The number of confirmed cases of CJD has risen steadily in recent years. This may be due to more accurate diagnosis and an increased awareness of the disease, but is also due to the emergence of a new form of the disease - variant CJD, or vCJD. This new form has been linked to a prion disease which affects cattle, bovine spongiform encephalopathy, or BSE. Variant CJD appears to affect younger people.

Please dig deep and donate whatever you can. 

Sending Mary-Lou and family much love and light.

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My charity

The CJD Support Network

The CJD Support Network

Charity Registration No. 1097173

The CJD Support Network offers advice, information and support for patients, carers and professionals who are involved in any form of suspected or confirmed CJD. Additionally it offers emotional and practical support; disseminates new information as research develops and offers advice for those who may be deemed at risk.

Donations 10

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Sadly missed by friends and colleagues

Donation by Janice Coote on 09/05/12

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Happy memories, going right back to the early days in Errington Road

Donation by Steve & Chris Culmer on 02/05/12

Donation by Anonymous on 30/04/12

£10.00

+ £2.50 Gift Aid

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Inspired to donate by this moving tribute http://randomjottings.typepad.com/random_jottings_of_an_ope/2012/04/my-friend-sue.html

Donation by Pat Walton on 27/04/12

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With all our love

Donation by Nicky and Alis on 27/04/12

£30.00

+ £7.50 Gift Aid

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Love and hugs. xxx

Donation by Kathryn Holloway on 26/04/12

£20.00

+ £5.00 Gift Aid

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Dearest Sue, this is the least we can do in hope of finding a cure to the cause of your leaving us far too soon. All my love, Louise. X

Donation by Louise Long on 26/04/12

£20.00

+ £5.00 Gift Aid

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Inspired by this fine tribute: http://randomjottings.typepad.com/random_jottings_of_an_ope/2012/04/my-friend-sue.html

Donation by David on 26/04/12

£5.00

+ £1.25 Gift Aid

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From Geoff and Margaret, for 60 years of memories.

Donation by Margaret Lovett on 25/04/12

In memory of dearest Sue, always such a ray of sunshine. Much love & light to Mary-Louise and family ~ Little Lou xo

Donation by Louise Hart on 16/04/12

Donation summary

  • * Online donations£300.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£300.00
  • Gift Aid£56.25

* Charities pay a small fee for our service. Find out how much it is and what we do for it.