Susan Hoare is fundraising for The Scleroderma Society

Run, Susie, Run!

Flora London Marathon 2009

on 26/04/2009

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Team members:

Claire Hathway

Raising money for

The Scleroderma Society

Charity Registration No. 286736

Scleroderma is a disease that can damage the skin and internal organs through scarring and poor blood supply. People with scleroderma live with constant anxiety about their future, not knowing how far or how fast the disease will progress. The Scleroderma Society supports people with this disease and funds vital research into this rare and complex condition.

Page owner

Susan Hoare

RSS

Raised: 114%

Target: £3,000.00
Raised so far: £3,414.00

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My story

Firstly, thank you for your kind interest in my fundraising efforts. My name is Susie and my motivation for raising funds in aid of The Scleroderma Society stems from the very moment I first heard of scleroderma.

To kickstart this fundraising campaign, my friend Claire and I completed a 5km Swimathon in September 2008. We swam 200 lengths of a 25m pool, which equates to just over 3 miles. It took us both a couple of hours. Now I have moved on to the challenge of running marathons, with the Flora London Marathon on 26th April 2009.

Scleroderma is a strange sounding disease and most people have never heard of it before. When I learnt I have some early symptoms of it, I was frightened, confused and tried very hard to deny it; I thought I was too young to have anything like that wrong with me. So it was there and then that I decided I would get on with enjoying life and stop worrying about what I couldn't change. As I enjoy running, I decided to step up to the challenge of marathon running.

I know the mental and physical challenges of training for a 26.2 mile race are tough; three to four hour long training runs, especially in winter, need you to dig deep and find a lot of determination. Also, keeping the symptoms of Raynaud’s at bay on long winter runs is a challenge in itself, but I won’t let that stop me!

This charity does a superb job of providing information and literature about scleroderma so that patients and their families can try and understand better what is going on with their condition and find ways to help themselves.

Furthermore, on a personal level, I have particularly benefited from having the opportunity to meet other members and not feel so alone with it! It still tickles me now to think that at a local group meeting I went to, I could shake hands with everyone in the room without having to explain once why my hands were so cold! I have been fortunate to benefit from the support of The Scleroderma Society and am therefore keen to help them continue their good work helping others with the disease, too.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Scleroderma Society gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

	Go, Susie! Donation by Andy & family 29/04/09	£20.00
	Well done! Donation by Joan 29/04/09	£10.00
	Congratulations! Donation by Rachel Fligelstone 28/04/09	£10.00 + £2.82 Gift Aid
	Well done Susie! Donation by Raisa Murto 28/04/09	£10.00 + £2.82 Gift Aid
	Better late than never! :) Hope it went well. Donation by Sonia Ytreeide Abdelmaguid 27/04/09	£4.00 + £1.13 Gift Aid
	Just seen your time online, well done! Donation by Annabel 27/04/09	£5.00 + £1.41 Gift Aid
	thanks for taking up the challenge - good luck Donation by hilary, elaine, babs & alison 25/04/09	£55.00 + £15.51 Gift Aid
	Kind donation from Mrs Anderson at St Patrick's! :) xxx Donation by Siobhan 24/04/09	£10.00 + £2.82 Gift Aid
	best of luck and enjoy the run! Donation by Julie Cox 24/04/09	£500.00 + £141.03 Gift Aid
	Good luck, Susie! See you at work next week! Donation by Nina Elomaki 23/04/09	£10.00 + £2.82 Gift Aid
	:-) Good luck Susie, have a good time running. Donation by Ellie, Jane and Malcolm 23/04/09	£100.00 + £28.21 Gift Aid
	good luck susie take as much time you like the man in the diving suit can wait! we need a cure - thank you for running! Donation by gail & richard 23/04/09	£80.00 + £22.56 Gift Aid
	Good luck and thank you for taking up the challenge Donation by alison scott 23/04/09	£100.00
	Go, Susie, Go! Donation by Plodder 22/04/09	£240.00 + £67.69 Gift Aid
	Good luck, Susie! Donation by Aunty Judy 22/04/09	£5.00
	Good luck Susie....I know you can do it! When the going gets tough...reach for the jelly babies!! Donation by Amy Lomax 20/04/09	£13.00
	Run Susie run! Donation by Geoff Hoare 20/04/09	£250.00 + £70.51 Gift Aid
	Can Dom come?? Donation by Brian Swift 14/04/09	£20.00 + £5.64 Gift Aid
	Donation by Dad and Mum 13/04/09	£80.00 + £22.56 Gift Aid
	Good Luck Susie Donation by Mary Robson 10/04/09	£10.00 + £2.82 Gift Aid
	Good luck x Donation by Charlotte 09/04/09	£20.00 + £5.64 Gift Aid
	Good luck! Donation by Liam Robson 08/04/09	£10.00 + £2.82 Gift Aid
	Very impressive indeed! Donation by Eva 07/04/09	£10.00 + £2.82 Gift Aid
	Donation by Hanne 07/04/09	£20.00 + £5.64 Gift Aid
	Run Susie Run Donation by Mum & Dad 06/04/09	£150.00 + £42.31 Gift Aid
	Good luck, Susie Donation by Ellie and family 06/04/09	£26.00
	Well done, Susie Donation by Mildred 06/04/09	£12.00
	We expect you to win, it's not far, girl! Donation by Ruby and Arthur 06/04/09	£5.00
	Mad but brave, hats off to you! Donation by Non-runner 06/04/09	£20.00 + £5.64 Gift Aid
	I am full of admiration for you. Good Luck! Donation by Camilla 06/04/09	£10.00 + £2.82 Gift Aid

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* Total raised online:	£3,346.00
Offline donations:	£68.00
Gift Aid plus supplement:	£868.72

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