MY THREE YEAR OLD GRANDDAUGHTER, SUMMER HAS RETT SYNDROME. Rett Syndrome is a devastating childhood neurological disorder for which at present there is no cure. The condition first strikes previously healthy little girls between the ages of 6-36 months and robs girls of their speech, hand use and normal movement. Unless a cure is found Summer will never be self-sufficient, she will be wheelchair-bound and dependent on others for every aspect of her life.

Surprisingly Summer has NO BRAIN DAMAGE. Rett Syndrome is caused by a faulty gene. This gene makes a protein which is necessary for normal brain function. Scientists have proven that replacing that protein in lab models of the disorder, completely reverses the condition, even in models of late stage disease.

Rett Syndrome Research Trust UK work to speed the time it takes to drive those research developments into treatments and cures for Summer and other girls and women with Rett Syndrome all over the world. This critical work relies entirely on the private effort of families and friends of girls with Rett Syndrome. We want to do our part.

I want to raise funds so that Summer can have some normal childhood and certainly normal adulthood.

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So please dig deep and donate now.