This is Hannah Holmes and her team.
She looks like any normal little girl. Unfortunately, this is not the case, as Hannah suffers from an exeptionally rare neurological disorder called Niemann Pick Type C.
If you have never heard of it you are not on your own. This little known devastating disease is a rare form of childhood dementia. It manifests itself in much the same way, destroying neurons and leading to a slow, mental and physical decline. She will slowly lose the ability to walk, talk, eat, laugh and eventually be unable to recognise anybody.
There is no treatment or cure for this terrible life-limiting disease. To watch your child slowly deteriorate is something no parent should suffer. There is no government funding for research etc. so all funds are raised by the NPDG (UK), which is the UK's support group.
Please, please help us raise awareness and funds for critical research, so no child or parent in the future will have to go through this.
Thank you very much.
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