Team Jack's SMA Awareness Sponsored Charity Walk

Jayne Davies is raising money for The SMA Trust
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Team Jack's SMA Awareness Sponsored Charity Walk · 27 August 2017

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

On bank holiday Sunday we will be doing a sponsored charity walk to raise awareness on SMA and raise some money for the SMA Trust.

On 12th July 2017, our friends, the Dorrington Family were given the heartbreaking news that their beautiful baby son Jack William Dorrington who was born on 25th May 2017 has SMA Type 1.

SMA is the leading genetic killer of infants and toddlers and yet there is little awareness on the disease.

Whilst we all cherish the little time we have with baby Jack, we would all like to raise awareness and as much money as we can to help them find a treatment and cure for this awful awful disease.

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Donation summary

Total
£2,847.50
+ £447.25 Gift Aid
Online
£2,847.50
Offline
£0.00

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