Why are we fundraising?

Our eldest son was diagnosed with PXE in the summer of 2013 and since then we've been wondering what we can do to help find ways of combatting the various illnesses related to the disease. So, in addition to the dietary and healthy lifestyle that we have to try and impose on our son, I thought it would only be the right thing to push myself, (and maybe some others), to enter into various physical challenges to help raise awareness and money to help international research into PXE.

About PXE

Pseudoxanthoma elasticum, PXE, is an inherited disorder that causes select elastic tissue in the body to become mineralised, that is, calcium and other minerals are deposited in the tissue. This can result in changes in the skin, eyes, cardiovascular system and gastrointestinal system. PXE was recognised over a hundred years ago. It affects approximately 1/50,000 people making it a rare genetic disorder.

So, if you can, please help us raise as much as possible to help make our sons future, and all those diagnosed with PXE, a much brighter and healthier one. All monies raised go directly to helping research into the disease and eventually finding a way to tame it.

Thanks so much for your support.