Update (13th July) - Thank you all so much for donating money to Rett Syndrome. We finished the run in 1 hour and 7 mins (without stopping once!!). We are so grateful for all your support and the money we have raised will help to significantly improve the lives of those suffering with the syndrome as well as their carers. We will be collecting money for another week or so so please continue to donate.

Thanks again

Caroline and Elizabeth x

 

Thanks for taking the time to visit our JustGiving page.

Caroline and Elizabeth Stone are taking part in the British 10K London Run on July 12th in aid of RETT Syndrome Association UK. This is a massive challenge for us as we have never run this far before!! Any donations are much appreciated.

"Rett syndrome is a complex neurological disorder. It affects mainly girls. Although present at birth, it is usually  undetected until the child is approaching one year of age, when major regression occurs. 

Genetic but not hereditary, it could happen in any family at any time.  Something goes wrong with the genetic makeup   of the cells which become the baby.  One in 10,000 girls is affected.

Whilst there is variability in the severity of the disorder, most people with Rett syndrome have a profound and multiple learning disability and are highly dependent on others for all their needs throughout life.  Increasingly, people with Rett syndrome live well into their 50s and beyond."

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

PS - Any support on the day is also much appreciated