Tom Perry is fundraising for Lowe Syndrome Trust

Tom Perry's 'Lowe Syndrome Trust' Page

BUPA London 10K

on 25/05/2009

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Raising money for Lowe Syndrome Trust

Charity Registration No. 1081241

The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.

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Tom Perry

Raised so far: £362.50

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Running around London dressed like a twat was clearly not enough of an embarrassment. Now I feel the urge to jump out of a plane at 10,000 feet with just a big hankerchief to break the fall. Or to be more accurate I've been co-erced into it (and you KNOW who you are!).

You may already have sponsored me & Lowe's Syndrome Trust but just as a reminder: Lowe Sundrome Trust is a childrens charity which funds research into an as yet incurable disease affecting the brain, eyes, kidneys, bones and muscles often leaving the child with partial or no sight, behavioural issues and - usually - a very short life.These are children who live, laugh and cry....in yours and my neighbourhood.

The money you donate goes straight into research by a team of top medics & scientists who are THAT close to finding a cure for Lowe's Syndrome which means YOU are THAT CLOSE to making it happen. Lorraine Thomas heads a group of ordinary mums, dads, aunts and uncles who work tirelessly to organise events and raise funds.

Please, please take time to look at the website at www.lowetrust.com where you will see details of the condition plus personal messages of support from patrons Jonathan Ross, Rod Stewart & Penny Lancaster, Tony Hadley and others. The money ALL goes to the research and a cure is within sight.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Lowe Syndrome Trust gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donations.

	Go on son! Donation by Kevin Tarbuck on 26/05/09	£10.00 + £2.82 Gift Aid
	TWO fundraising sites Tom? Donation by Mark on 22/05/09	£15.00 + £4.23 Gift Aid
	As long as you promise to stop name dropping!! Good luck, AGAIN! Donation by 'Second Again Sam' on 19/05/09	£15.00
	Good Luck Donation by John Pulley on 18/05/09	£10.00
	Good luck Tom Donation by mike on 13/05/09	£10.00 + £2.82 Gift Aid

Donate now

* Total raised online:	£60.00
Offline donations:	£302.50
Mobile donations:	£0.00
Total Raised:	£362.50
Gift Aid plus supplement:	£9.87

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Find out how much it is and what we do for it.

Tom Perry's 'Lowe Syndrome Trust' Page

Raising money for Lowe Syndrome Trust

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