GBP
USD - US Dollars
EUR - Euros
HKD - Hong Kong Dollars
SGD - Singapore Dollars
CAD - Canadian Dollars
AED - UAE Dirham
AUD - Australian Dollars
TMSF Coast to Coast
Event: jason harwood's fundraising
£10,339.21 raised of £10,000.00 target
33 donations
My Target:
£10,000.00
£10,339.21 raised so far
How to make a donation
Donate online at - www.justgiving.com/tmsf-lejog
By mobile internet Scan this code on your smartphone to go straight to jason harwood's page.
By text message to donate £10 Text ADCS96 £10
to 70070
My story
Way back in June 2007 my wife gave birth to our adorable son Benjamin (see picture). Within 2 hours of being born it was discovered that Benjamin had bi-lateral cataracts it wasn't until the next day that it became apparent that he possibly had Lowe Syndrome. Lowe Syndrome is also known as OCRL (Oculo-Cerebro-Renal) syndrome. The syndrome is caused by a DNA mutation - a single defective gene on the X-chromosome - that results in the lack of an enzyme. The mutation can occur without any family history (a spontaneous mutation) or may be inherited through the mother. Babies are born with bi-lateral cataracts, hypotomia (muscle weakness), kidney problems (wasting of essential nutrients) impaired growth, intellectual impairment and later may suffer brittle bones, arthritis, rickets, epilepsy (seizures) and behavior problems (autistic spectrum disorder). Many also have cysts and dental problems.
As the months went by he had his cataracts removed at 8&9 weeks old and now had a peg into his stomach for feeding (lowes children struggle to thrive). On top of these problems he also has problems with his kidneys which means that he has supplements in his food everyday. Benjamin is a happy little boy but due to having Lowe Syndrome he will probably not live into his 30's and may always need constant care (which his dedicated mum provides everyday). He has learning difficulties which coupled with low muscle tone means that the development of his mobility is delayed meaning he may never walk or it will take longer than most children.
Last year we managed to raise £6000 by cycling from Holyhead (Wales) to Cromer (Norfolk) in 3 days. So now myself and 4 colleagues have raised the stakes by attempting to cycle from Lands End to John O'Groats. We are all very dedicated to raising money for the Lowe Syndrome Trust and will strive to reach our goal. The event is planned to take place May - June 2011 and we hope to do it in 9 days averaging 100 miles a day.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
My gallery 3
My charity
Lowe Syndrome Trust
Charity Registration No. 1081241
The Lowe Syndrome Trust is a UK Charity formed in June 2000 by parents of a Lowe syndrome child. The charity supports families and initiates and funds medical research into Lowe Syndrome. Lowe Syndrome is a genetic disorder that can occur with no family history, affecting boys and multiple physical and mental handicaps including cataracts in both eyes, muscle weakness (hypotonia or floppy baby syndrome), kidney problems, cysts, brittle bones, arthritis, poor growth, mental impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding to find a cure.
Donations 33
Donation by jason harwood on 31/07/12
£150.00
with all good wishes from Sittingbourne Christian Spiritualist Church
Donation by diane hoult on 05/10/11
£1,000.00
+ £250.00 Gift Aid
Donation by Robbie Hoult on 14/09/11
£130.00
+ £32.50 Gift Aid
Sponsorship
Donation by jason harwood on 11/09/11
£251.00
+ £62.75 Gift Aid
tesco collection, donations and sponsorship
Donation by jason harwood on 05/09/11
£871.71
There we are son good job well done.Few quid for the coffers.Dad
Donation by Brian Harwood on 02/09/11
£1,000.00
+ £250.00 Gift Aid
donations from caroline & andrew, pearl & keith, jack & tone and pam allard
Donation by jason harwood on 03/08/11
£65.00
+ £16.25 Gift Aid
If you've already completed it, well done. If not, good luck! Adam and Bren
Donation by Adam O'Sullivan on 17/07/11
£25.00
+ £6.25 Gift Aid
Good luck Jase and everyone else involved! .....Jen and Trevor x
Donation by Jennifer Coe on 06/07/11
£10.00
+ £2.50 Gift Aid
rog kings donation
Donation by jason harwood on 04/05/11
£10.00
+ £2.50 Gift Aid
various donations
Donation by jason harwood on 29/04/11
£26.00
money from ebay items
Donation by jason harwood on 27/04/11
£97.00
Birthday present donations from grandma's 90th party
Donation by jason harwood on 05/04/11
£250.00
Donation by Rob Hoult on 27/01/11
£40.00
+ £11.28 Gift Aid
charity stall, prints and donations
Donation by jason harwood on 23/01/11
£655.00
For heart rate monitor
Donation by jason harwood on 10/10/10
£6.50
proceeds from TCS dining in night
Donation by jason harwood on 24/09/10
£82.00
+ £23.13 Gift Aid
Collected during the SSP Ryder Cup Golf challenge - office Putting and Pitch & Putt competitions
Donation by Capgemini - telford on 16/09/10
£172.00
+ £48.51 Gift Aid
Bring it on!!!!! Its all down hill, right?
Donation by Adam Fitzsimmons on 07/06/10
£100.00
+ £28.21 Gift Aid
Get stuck in and good luck.
Donation by Beowulf on 26/05/10
£10.00
+ £2.82 Gift Aid
Give it laldi on the pedals!
Donation by Alexander Wardlaw on 04/05/10
£10.00
+ £2.82 Gift Aid
Best of luck with your fundraising
Donation by John May on 29/04/10
£10.00
+ £2.82 Gift Aid
Best of luck, wish you and your family all the best for the future.
Donation by Wolfy on 23/04/10
£10.00
+ £2.82 Gift Aid
Good luck. You have an amazing little boy there. Hope you reach your target.
Donation by Dantura on 22/04/10
£20.00
+ £5.64 Gift Aid
Donation by steven parr on 22/04/10
£20.00
+ £5.64 Gift Aid
Donation summary
- * Online donations£5,101.21
- Offline donations£5,238.00
- Text donations£0.00
- Total raised£10,339.21
- Gift Aid£774.78
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
