tom wheller

Tom Wheller + Abbi Thompson raising money into research for CMN sufferers page

Fundraising for Caring Matters Now
£9,562
raised of £6,000 target
Donations cannot currently be made to this page
Caring Matters Now

Verified by JustGiving

RCN 1192670
We provide support to those affected by CMN

Story

 

 

This is our son Ethan who was born 25th june 2012 with

 CONGENITAL MELANOCYTIC NAEVI (CMN) .

 this is like a birthmark/mole which covers about 35% of his body.

 when he was born at york hospital the midwifes/doctors had not seen

 anything like this before and refered us to the dermatologist professor 

newtonbishop in leeds and then onto dr veronica kinsler at

 Great Ormand street hospital London.

 on his 1st birthday he had to have an MRI scan to check his brain and spinal cord 

to check for abnormalities which can cause neurological problems.

Thankfully Ethans came back all clear and we where both over the moon

 by his results but unfortunatly in some families they do not.

 CMN can also cause Maglignant Melanoma of the skin or brain which can 

occur in of those with the largest Naevi. Dr vernoica kinsler then told us

 about this amazing charity called CARING MATTERS NOW who help 

families who are affected by this. we recently went to one of there family 

days in liverpool and i cannot begin to discribe how wonderful the day was

 for us, chatting to familys and sharing experiances good and bad. they also

 inspired us to start to raising money for this charity as it is very close to our

 hearts. The research so far has been amazing as they have found the

 reason which this happens and found the gean. Now Dr Kinsler is wanting

 to find a way to stop more cmn growing after birth as we know because

 Ethan has grown more and more on his legs,bum and arms and also

 possible treatments but to do this we need your support to raise money 

and awarness for this charity. In our own opinion this charity has helped us

 as a family to come to terms with ethans cmn and have shown us that we

 are not alone.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

 

Share this story

Help tom wheller

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Caring Matters Now

Verified by JustGiving

RCN 1192670
Caring Matters Now is the only UK charity supporting children and adults affected by Congenital Melanocytic Naevi (CMN) - a genetic condition, consisting of dark brown hairy birthmarks covering up to 80% of the body. The condition has many expressions, some of which can lead to medical complexities

Donation summary

Total raised
£9,561.60
+ £2,185.60 Gift Aid
Online donations
£9,561.60
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.