For Duchenne Muscular Dystrophy
Page creator: Tony Ackroyd
Page closes: 31st Dec 2009
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About the charity : Action Duchenne Action Duchenne
Action Duchenne is a national charity that aims to find a cure for Duchenne, a severe genetic muscle wasting disease. The condition affects mainly boys and without treatment most of these young men are completely paralysed by their early teens and die by their late teens or early 20s. To ensure we do not lose another generation of young people to this terrible disease we need more funding for research and treatment.
Charity Registration No 1101971
Fundraising target:  £100,000.00
Donations so far:  £ 106,373.81
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Personal message:

HURRAY, we have surpassed our target of £100,000!  Thanks to all who have supported us over the passed 15months. We could not have done it without you.  We have been staggered by the phenomenal support we have had and can't thank people enough.  So far all events have been complete sell outs.

We raised £33,000 on the two dinners we held in November and December and £1280 on a Ceilidh on the 12th January.  We are very grateful to the pupils and families of Dobcross C of E Primary School for their recent sponsored walk, resulting in a donation of £3353.10 towards clinical research.

A new target has been set which we believe CAN be achieved with the support of all our friends and relatives. A concert is planned for the 28th June, a sponsored walk across Morecambe Bay on the 12th July, a coffee day at home,(raised £600) a folk night on 20th September and another dinner on the 3rd December.  If you would like details please email me on tonyackroyd@btinternet.com.

*The money raised so far has enabled the charity to start funding a research programme at Oxford University.  We hope by this time next year to have some result and proceed to clinical trials sometime thereafter.  This could not have been achieved without your support.*


Edward, our 5 year old grandson who we believed to be a perfectly healthy child, was diagnosed in May 2007 with Duchenne Muscular Dystrophy; a degenerative and as yet, incurable muscle wasting disease.

Duchenne Muscular Dystrophy (DMD) affects 1 in every 3,500 boys born. It can also affect girls, although this is very rare.
Children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. THERE IS NO CURE.

For the moment, Edward is a lively, child who adores life and doing everything that an active 5 year old enjoys. While the disease has yet to show its devastation, the stark facts about DMD are hard to believe:
DMD has a 100% fatality rate; on average DMD boys die in their late teens or early twenties; most boys with DMD are in a wheelchair from age 10-12 years old;  DMD is associated with respiratory failure, heart failure, and debilitating orthopaedic complications.


The money raised by us will go towards funding critical research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. ACTION DUCHENNE - Cure Duchenne Muscular Dystrophy (www.actionduchenne.org) is a registered charity and funds vital research.

If you prefer to donate offline can send a cheque to the charity at ACTION DUCHENNE Epicentre 41 West Street London E11 4LJ

WE NEED YOUR HELP. WITHOUT A CURE THERE IS NO HOPE FOR ANY BOY WITH DMD. PLEASE GIVE GENEROUSLY

Many thanks for your kindness in making this donation.

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Display Name Date Amount Tax Bonus  Comment
Andrea Walsh 21/11/2008 £100.00 £28.21 What a staggering total raised so far for Edward and others in his situation.  
lolage (Ben Davies) 09/11/2008 £10.00 n/a Thanks from Ben and phatnphunky at www.community.flexifoil.com 
CKB Boards 03/11/2008 £465.00 n/a Raffle for CustomKiteboards 60th Party held at Airbossworld Extreme Sports Centre, Halloween Event 1st-2nd Nov. 2008 - www.airbossworld.co.uk 
NEIL BEEFORTH 30/10/2008 £25.00 £7.05 Good luck with the fundraising,(friend of shane) 
SA 29/10/2008 £21.55 £6.08 saved coppers 
Diane Stokes 14/10/2008 £36.00 £10.15 I am a friend of Aaron Spencer 
Hamaad, Atif, Raza 11/10/2008 £50.00 £14.10  
Jo Dean 10/10/2008 £20.00 £5.64  
John 01/10/2008 £20.00 £5.64  
Paul Ackroyd 08/09/2008 £23.00 £6.49 A2 Accident Solicitors 
SMA 08/09/2008 £35.00 n/a Various donations 
maisie 18/08/2008 £50.00 £14.10 A2 Accident Solicitors 
alison sowden 28/07/2008 £316.00 £89.13 cheers from us that did the beer walk. sorry its taken so long but i have only just recovered from the hangover!  
sheila and peter rushworth 23/07/2008 £25.00 £7.05 with our best wishes  
SMA 20/07/2008 £80.00 £22.56  
Michael, Sara & James 03/07/2008 £35.00 £9.87 Happy Birthday Dad and Paul 
John, Suzanne, Ben & Lucas 03/07/2008 £20.00 £5.64 Happy Birthday Dad. 
Susan 28/06/2008 £12.50 n/a HAND-MADE CARDS.. many thanks to ALMA HARTLAND whose card sales now total £81:70 
paul Ackroyd 25/06/2008 £105.00 £29.62 Thank you to all our friends who have so kindly donated for my 40th, hope you enjoyed the "bash"!  
Paul Ackroyd 25/06/2008 £85.00 £23.97 Thank you all at A2 for your kind support for my 40th 
Stan, Vanya, Heather & Abigail 24/06/2008 £40.00 £11.28 Happy 40th Paul 
Dransfield 24/06/2008 £40.00 £11.28 Birthday Wishes! Jane, Paul, Adam & Wills 
MAISIE 24/06/2008 £30.00 £8.46 A2 Accident Solicitors 
SMA 24/06/2008 £8.00 n/a QUIZ: now up to £115 
Paul Ackroyd 23/06/2008 £174.00 n/a Donations from my 40th party, to stop Paul & Dave singing!  
Sam Lawman - from CKB boards (rider) 21/06/2008 £50.00 £14.10 Good luck bud, best wishes 
SMA 21/06/2008 £11.00 n/a More QUIZ sales TOTAL to DATE: £107 
SMA 21/06/2008 £28.00 n/a More proceeds from Coffee Morning - GRAND TOTAL now £600. Thank you to all who supported. x x 
SMA 21/06/2008 £21.00 £5.92 Donation to Coffee Morning fundraising event 
SMA 17/06/2008 £100.00 n/a Diggle School Fête GRAND DRAW winner Ewa Hartland: many thanks for donating your prize. x x 
Susan 16/06/2008 £10.00 £2.82 Birthday wishes, thanks Jeanette 
Paul Ackroyd 02/06/2008 £500.00 £141.03 In Grandma's memory. Thank you all for your continued support. 
Maisie Scholes 23/05/2008 £33.00 £9.31 A2 Accident Solicitors 
Scott Swinton 17/05/2008 £500.00 £141.03  
Susan Ackroyd 08/05/2008 £50.00 n/a £100 Allan's printer (+£50 to Leukaemia Research) 
Susan Ackroyd 08/05/2008 £17.00 n/a QUIZ sales; thank you Chris McG. 
Mat Speed 07/05/2008 £50.00 £14.10 Best Wishes 
T & S 30/04/2008 £50.00 n/a Many thanks to Keith Turmeau. 
Susan 23/04/2008 £25.00 n/a Raised through the sale of lovely hand-made cards. Thank you so much Alma (Hartland) 
Tony 22/04/2008 £2.00 n/a Auction of Glyn's packed lunch! 
Tony & Susan 22/04/2008 £20.00 £5.64 No SEA VIEW at Whitby!! 
Maisie 18/04/2008 £32.00 £9.03 A2 Accident Solicitors 
Mrs. Kay Speed 18/04/2008 £100.00 £28.21 To help with your fight 
colincrawford 15/04/2008 £100.00 £28.21 we will get there little man 
D P 14/03/2008 £23.00 n/a Many thanks to friends from Lent course (CTiS)  
maisie 14/03/2008 £23.00 £6.49 A2 Accident Solicitors 
John & Eva 12/03/2008 £5.00 n/a Best wishes 
Paul Ackroyd 12/03/2008 £25.00 n/a Kind donation from G Vinge, thank you. 
Paul Ackroyd 12/03/2008 £100.00 n/a Kind donation from Mrs M Whitehead, thank you. 
Paul Ackroyd 12/03/2008 £25.00 £7.05 Kindly donated by Kate, Dave f& Archie for set of drawers 
Anonymous 06/03/2008 £5.00 £1.41 Good Luck 
M & D 24/02/2008 £10.00 £2.82 Let's put all our trust in God.  
Christine & Peter 22/02/2008 £10.00 n/a Good luck with everything 
Anonymous 22/02/2008 £5.00 £1.41  
michael warrington 21/02/2008 £25.00 £7.05 Best wishes 
Tony & Susan 20/02/2008 £200.00 £56.41 In memory of a wonderful Mum xxx 
Susan Ackroyd 20/02/2008 £79.00 n/a INTERIM sales of TV QUIZ (please contact me if you'd like some) 
Daddy 19/02/2008 £100.00 £28.21 In memory of our Grandma Rose xxx 
constance 19/02/2008 £100.00 n/a in memory of my dear sister-in-law Rose with love. 
Paul Ackroyd 15/02/2008 £20.00 £5.64 from A2 
Paul Ackroyd 13/02/2008 £400.00 £112.82 Love from Daddy, the fight goes on....!!! 
jim lb35 ckb boards 06/02/2008 £175.00 £49.36  
kermitstu 06/02/2008 £50.00 n/a From Stu LB37 CKB Boards 
KermitStu 31/01/2008 £50.00 n/a From Stu LB37 CKB Boards 
Matt 29/01/2008 £175.00 £49.36 From Matt LB36 CKB Boards 
Mary Theresa Scholes 22/01/2008 £20.00 £5.64 A2 Accident Solicitors 
Adam & Isobel 10/01/2008 £3.00 n/a Many thanks for the donation of your pocket money 
Graham Bonser 10/01/2008 £50.00 £14.10 Very best wishes to the Ackroyd family. 
Damian Cunningham 09/01/2008 £50.00 £14.10 Hope Saturday Goes Well. Damian 
Pete Walmsley 03/01/2008 £10.00 £2.82  
Ian & Liz McCaul 03/01/2008 £500.00 £141.03 Thanks to Paddy Walsh - Keep up the good work 
Cousin Jane 25/12/2007 £101.00 £28.49 Happy Xmas to Edward & the Ackroyd Family - in lieu of cards 
Cousin Jane 25/12/2007 £99.00 £27.92 Thank you Iver Flowerland for the Xmas Tree! 
John Suzanne Ben Lucas 24/12/2007 £25.00 £7.05  
Steve and Jackie Boardman 24/12/2007 £20.00 £5.64 Supporting little Edward 
John, Matt and Tim 21/12/2007 £100.00 £28.21 Best wishes from us all 
Craig Budsworth 21/12/2007 £20.00 £5.64 No doubt he's as cheeky a lad as he looks! 
estelle machell 21/12/2007 £10.00 £2.82  
Christopher Taylor 21/12/2007 £50.00 £14.10 Good Luck with raising the awareness & fundraising 
Mary Theresa Scholes 20/12/2007 £117.00 £33.00 A2 Accident Solicitors 
Tony Ackroyd 20/12/2007 £20.00 n/a Many thanks SYLVIA for your kind donation 
Philip Andrews 20/12/2007 £50.00 £14.10 Happy Christmas! 
Susan 19/12/2007 £30.00 £8.46 Happy Christmas, Ros, Alan and Katy 
Tony Howse 19/12/2007 £5.00 £1.41 Best wishes (from a friend of Colin) 
Colin McNulty 19/12/2007 £50.00 £14.10 Good luck for the future 
Charlie & Linda Peacock 16/12/2007 £20.00 £5.64 Well done and we hope you reach your target 
Susan 15/12/2007 £44.20 n/a MANY THANKS to ALMA for selling HAND-MADE Christmas cards for Action Duchenne 
Susan & Tony 13/12/2007 £50.00 £14.10 Happy Christmas, John, Silvia, Johnny & Susan (Australia) 
Susan Ackroyd 13/12/2007 £10.00 £2.82 HAPPY CHRISTMAS Karen and Martin x x 
S.A. 12/12/2007 £20.00 n/a HAPPY CHRISTMAS to the children, staff & friends at ST THOMAS SCHOOL, WERNETH from EWA HARTLAND 
Mary Theresa Scholes 07/12/2007 £18.00 £5.08 A2 accident solicitors 
Mary Theresa Scholes 07/12/2007 £22.00 £6.21 of A2 
Dan Arthurs 06/12/2007 £10.00 £2.82  
Paul James Steward 06/12/2007 £100.00 £28.21 All the best little buddy 
Tony Ackroyd 06/12/2007 £5.00 £1.41 Thanks to JOHN & EVA BRAIN for their kind donation 
Susan Ackroyd 06/12/2007 £40.00 n/a Thanks to LIZ & LOUISE of PARTY LITE 
Susan 04/12/2007 £12.00 £3.38 Happy Christmas Jeanette 
Helen Sechiari 04/12/2007 £100.00 £28.21 I very much hope you achieve your aim 
Ken & Marion Deighton 02/12/2007 £50.00 £14.10  
Paul Ackroyd 28/11/2007 £20.00 £5.64 A2 funding 
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*Total donated online: £13,283.25
Amount raised offline: £93,090.56
Gift Aid plus supplement: £2,794.15
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duchenne muscular dystrophy, easyfundraising, pp uk muscular dystrophy, sayhellotoedward
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