HURRAY, we have surpassed our target of £100,000!  Thanks to all who have supported us over the passed 15months. We could not have done it without you.  We have been staggered by the phenomenal support we have had and can't thank people enough.  So far all events have been complete sell outs.

We raised £33,000 on the two dinners we held in November and December and £1280 on a Ceilidh on the 12th January.  We are very grateful to the pupils and families of Dobcross C of E Primary School for their recent sponsored walk, resulting in a donation of £3353.10 towards clinical research.

A new target has been set which we believe CAN be achieved with the support of all our friends and relatives. A concert is planned for the 28th June, a sponsored walk across Morecambe Bay on the 12th July, a coffee day at home,(raised £600) a folk night on 20th September and another dinner on the 3rd December.  If you would like details please email me on tonyackroyd@btinternet.com.

*The money raised so far has enabled the charity to start funding a research programme at Oxford University.  We hope by this time next year to have some result and proceed to clinical trials sometime thereafter.  This could not have been achieved without your support.*

Edward, our 5 year old grandson who we believed to be a perfectly healthy child, was diagnosed in May 2007 with Duchenne Muscular Dystrophy; a degenerative and as yet, incurable muscle wasting disease.

Duchenne Muscular Dystrophy (DMD) affects 1 in every 3,500 boys born. It can also affect girls, although this is very rare.
Children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. THERE IS NO CURE.

For the moment, Edward is a lively, child who adores life and doing everything that an active 5 year old enjoys. While the disease has yet to show its devastation, the stark facts about DMD are hard to believe:
DMD has a 100% fatality rate; on average DMD boys die in their late teens or early twenties; most boys with DMD are in a wheelchair from age 10-12 years old;  DMD is associated with respiratory failure, heart failure, and debilitating orthopaedic complications.

The money raised by us will go towards funding critical research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. ACTION DUCHENNE - Cure Duchenne Muscular Dystrophy (www.actionduchenne.org) is a registered charity and funds vital research.

If you prefer to donate offline can send a cheque to the charity at ACTION DUCHENNE Epicentre 41 West Street London E11 4LJ

WE NEED YOUR HELP. WITHOUT A CURE THERE IS NO HOPE FOR ANY BOY WITH DMD. PLEASE GIVE GENEROUSLY

Many thanks for your kindness in making this donation.