Tony Bridger

Huntington's Disease

Fundraising for Huntington's Disease Association
£262
raised
by 31 supporters
Anthony Bridger's fundraising, 10 June 2010
Huntington's Disease Association

Verified by JustGiving

RCN 296453

Story

 In 1997 my ex-wife, and mother to my 6 children, Linda, was diagnosed with Huntington's Disease. This is a progressive incurable neurological condition which in my younger days was often called "St Vitus Dance". The sufferer slowly loses the ability to control their movements and are sometimes mistaken as drunks. This is not helped by the fact that as the disease progresses they cannot control their speech which becomes slurred. 

 

Over time this illness affects memory, calculation and judgement. Other symptoms are anxiety, irritability, temper outbursts and depression. Gradually they lose the ability to walk or look after themselves and eventually are unable to speak or communicate. Normally they are fully aware of what is happening to and around them.Their joints can stiffen until they are paralyzed. It can prove difficult to swollow without choking so a feeding tube has to be fitted .

 

As Huntingtons is a hereditary disease each child of the sufferer has a 50% chance of developing the disease and, of course, the same 50% chance of passing it onto their children. As Linda had no idea that her father had been a sufferer it was a shock when she was diagnosed. Imagine how upsetting it was for her when she realised she may have already passed this terrible illness to some of her children.

 

Although most of my children have been tested and found they have not inherited this disease, one of my daughters has been told she has definitely inherited it. Looking after a disabled parent is difficult for anyone. I cannot even imagine what its like for my daughter to help to care for Linda when she knows that sometime in the future she will be in the same position.
We know that in today's modern scientific world the cure to this slow cruel illness could be just waiting to be found but research takes money, a lot of money. Whilst helping to raise awareness and promote research the Huntington's Disease Association also provides care and support for todays sufferers.
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About the charity

Huntington's Disease Association

Verified by JustGiving

RCN 296453
Huntington's Disease Association England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training & advice to families and professionals; raises awareness, and promotes research towards better treatment and care.

Donation summary

Total raised
£262.00
+ £4.23 Gift Aid
Online donations
£262.00
Offline donations
£0.00

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