Tony Burton is fundraising for Cleft Lip And Palate Association

Running for Frankie

Flora London Marathon 2009

on 26/04/2009

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Raising money for

Cleft Lip And Palate Association

Charity Registration No. 1108160

Clapa is a support organisation for all those with and affected by cleft lip and palate. One in 700 children are born with this condition - about 1,000 a year in the UK. CLAPA provides information, advice and one to one support through its national network of branches. It also runs confidence-building camps for children and distributes bottles and teats for babies born with cleft lip and palate.

Page owner

Tony Burton

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Raised: 98%

Target: £1,000.00
Raised so far: £975.00

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My story

Thanks for visiting my fundraising page.

Three years ago my wife claire and i had our second son, frankie. During Claire's twenty week scan we were told that our unborn baby would have a cleft lip and palate. I must say this was a very hard time for us as we assumed we would not incur any problems with our second pregnancy as our first was normal. after numerous scans and tests it was confirmed that frankie would be born with a unilateral cleft lip and palate, for those of you that have not heard of this term before it meant that frankie would be born with a large gap in his lip, gum and palate.

Fortunately the NHS were excellent and supported us from day one. We were put in touch with a specialist Cleft lip and palate team (CLAPA) who were able to support us through each and every stage of the process. When frankie was born he was unable to suck from a normal bottle and we had to feed him by a special squeezy bottle that we would squeeze to his reflex enabling him to drink the milk that a baby needs.

At three months old frankie went through major facial reconstructiin to close the wide gap in his lip and nose. As you can imagine this was a very tough and trying time and we had a lot of tears and worry. Once recovered from this operation frankie then had another major operation at the age of six months old. This operation was to close the large gap that ran from the front of his palate to the back of his palate. Sadly this operation was unsucessful and frankie had to have further major surgery on his palate in june 2008.

Frankie also needs another major operation when he is nine years old. He has glue ear and is his first set of grommits in stitue. Frankie has had intensive speech therapy as speech is often a problem with cleft babies and is now on the road to recovery.

It's not all doom and gloom! Frankie is a little cracker, he's as tough as old boots and has always bounced back after surgery. Fortunately frankie was so young he will not remember all that he has been through. However for us it is a different story and we will never forget all the worry and upset we have been through with frankie.

I want to raise money to help sucure CLAPA'S continued operation. I know that CLAPA helps people all of the time. You don't realise these charities are out there until you need them. Claire and I may experience this condition if we have more children and Frankie also has a greater risk of it reoccuring in his children. CLAPA have helped my family, and now I want to give something back.

You can visit CLAPA'S website at www.clapa.com

Check out pictures of Frankie in the gallery at http://www.clapa.com/surgery_photos.php?id=21&Submit.x=10&Submit.y=12

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Cleft Lip And Palate Association gets your money faster and, if you’re a taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

	Well done Donation by Lizard 08/06/09	£10.00 + £2.82 Gift Aid
	Great job Tony just promise me you will buy some bigger running shorts! Donation by Tarzan 06/06/09	£10.00 + £2.82 Gift Aid
	Many thanks to Jan for her fundraising efforts and thanks to all the customers from the shop. Donation by Family and Customers from Jan's Shop 05/06/09	£129.00
	Kindly raised by Auntie Barb and her amazing hand crafted greetings card. Very generous and very much appreciated. Donation by Auntie Wendy 05/06/09	£100.00
	WELL DONE MATE Donation by alex burzotta 29/05/09	£15.00 + £4.23 Gift Aid
	Well done Tony - nobody told me you were doing it! Donation by Anna Betts 28/05/09	£10.00
	Thanks so much to all of my colleagues for their kind words of support (and sarcasm!) and their generous donations to this charity. Donation by Team 2 Response at Limehouse Police Station 28/05/09	£330.00
	Congratulations Tony! What a great personal achievement for such a wondeful cause. Frankie will be very proud of his Daddy! Lots Of Love x x x Donation by Lorraine & Steve Bustard 04/05/09	£20.00 + £5.64 Gift Aid
	You would have done it 30 mins quicker if you didn't drink so much on the 18th!! Donation by Aaron & Becky Munson 30/04/09	£26.00 + £7.33 Gift Aid
	just another fiver for you! Donation by PamnRod 29/04/09	£5.00 + £1.41 Gift Aid
	good for you, i couldnt do the marathon it will be worth it in the end!! xx Donation by trina docherty 13/04/09	£10.00 + £2.82 Gift Aid
	Good Luck Tony. Donation by Warren Byrd 01/04/09	£10.00 + £2.82 Gift Aid
	GOOD LUCK 'HOFF' Donation by GAZ & KATE 30/03/09	£30.00 + £8.46 Gift Aid
	Best of luck mate, I'm sure you'll make it round or you'd of never been SC! Donation by Mark Garbus 12/03/09	£10.00 + £2.82 Gift Aid
	Good luck mate, a very worthy cause. Donation by Charles Byrd 10/03/09	£15.00 + £4.23 Gift Aid
	Wishing you all the best, it's a great thing you are doing. Looking forward to the celebratory drinks after already! Good luck! xxx Donation by Mel, Matt & Jessica Ball 24/02/09	£10.00 + £2.82 Gift Aid
	Good luck Tony and wishing you a speedy recovery after all that effort!! Donation by Pam & Rodney Byrd 22/02/09	£20.00 + £5.64 Gift Aid
	Hi Tony, good luck with the run, hope the training's going well. All the best Matt, Clare & Morgan. Donation by Matt and Clare Brand 17/02/09	£10.00 + £2.82 Gift Aid
	Good luck Tony at least it's something you can say you've done before you hit the big 30!! lots of love Lisa, Adam and family xxxxxx Donation by Lisa Gardiner (Big sis) 13/02/09	£20.00 + £5.64 Gift Aid
	All the best from Marg Donation by Burt 06/02/09	£10.00 + £2.82 Gift Aid
	Good luck boy........... Donation by Danny Boy 03/02/09	£25.00
	You're my 'babe', and I'll always support you in anything that you do. Good luck, and be careful, you're a model husband, father and son, bless xxxxxx Donation by CrazyCaz(Mum) 02/02/09	£25.00
	Good Luck! You can do it! Will come and watch you. xxx Donation by Burt 02/02/09	£25.00 + £7.05 Gift Aid
	I am so proud of you tony, i will be waiting for you at the finish line. love you millions. Mrs B...x Donation by Mrs Claire Burton 01/02/09	£100.00 + £28.21 Gift Aid

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* Total raised online:	£975.00
Offline donations:	£0.00
Gift Aid plus supplement:	£100.41

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