On 26th April 2009, I will be taking part in the Flora London Marathon, to raise money for Jeans for Genes.
Jeans for Genes are a charity which raises money for the care of children with genetic disorders, as well as supporting research into the causes and curses of these genetic conditions. Jeans for Genes were fantastic in supporting my cousin when her son was diagnosed with Wiskott Aldrich syndrome. He is now making a full recovery after a bone marrow transplant, and recently started nursery for the first time. You can read more about his story here
Every half an hour a baby is born in the UK with a genetic birth defect or genetic disorder which could seriously affect their lives. Jeans for Genes helps to provide much needed help, support and information for children and their families. They also invest in ground-breaking research to establish the causes of these conditions and how they can be treated.
There are more than 4,000 recognised genetic disorders and many more that doctors have yet to give a name to.
Research is vital in understanding what causes genetic disorders and how they can be treated. Funding from Jeans for Genes is helping scientists across the country to carry out research into a wide range of disorders.
With our help we can improve the lives of as many affected families as possible, no matter how rare their condition.
I kindly ask you to help me with this cause so please sponsor me in my first marathon run.
I will be keeping you up to date with blog posts and photos so watch this space!
As part of my training, I will also be taking part in the following events and would love for you to attend:
BHF Hearts First Santa Run - 7th Dec (a 6km run in a Santa suit!)
Charity Car Wash:
The George pub, Winnersh - Sunday March 29th, April 5th, April 12th and April 19th
Charity Pub Quiz:
The George pub, Winnersh - early April
Thank you for your support!
Tom
