Valerie Jackson is fundraising for RETT syndrome Association UK

Valerie Jackson's Fundraising Page

Flora London Marathon 2009

on 26/04/2009

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Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Valerie Jackson

RSS

Raised so far: £1,461.20

Donate now

My story

Thanks for visiting my fundraising page.

Yes, I really am planning to run the London Marathon in April.

Although I have wanted to do this for a while I still feel hopelessly ill-prepared and am just hoping to complete the course, not too concerned with the time.

I am running to raise funds for the Rett Syndrome Association so that they can continue to give support to families with a Rett Syndrome member as well as fund research into the causes and possible treatments that may become available.

Please consider sponsoring me as the more sponsorship I receive, the more pressure I will feel to complete the full 26.2 miles. (How far? I must be mad to even attempt this.)

Ah well, there's no going back now, so please wish me luck.

Sarah
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: RETT syndrome Association UK gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

	Best of luck on Sunday! 23/04/09	£100.00 + £28.21 Gift Aid
	you'll be seeing us!! 18/04/09	£200.00 + £56.41 Gift Aid
	Best of luck 06/04/09	£25.00 + £7.05 Gift Aid
	keep on running... 31/03/09	£250.00 + £70.51 Gift Aid
	good luck A. Valerie! 19/03/09	£20.00 + £5.64 Gift Aid
	There must be an easier way! 12/03/09	£40.00 + £11.28 Gift Aid
	keep at it girl ! 11/03/09	£500.00 + £141.03 Gift Aid
	rather you than me 11/03/09	£200.00 + £56.41 Gift Aid
	Crack on Val 11/03/09	£50.00
	Very impressed. 07/03/09	£50.00 + £14.10 Gift Aid
	just keep on training 14/01/09	£26.20 + £7.39 Gift Aid

Donate now

* Total raised online:	£1,461.20
Offline donations:	£0.00
Gift Aid plus supplement:	£398.03

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.