Raised: 532%
Target: £1,000.00
Raised so far: £5,316.50
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My story

 

Hello

Thank you for coming to this page.  My daugher Nicole has Neurofibromatois Type 1.  There is no government funding into Neurofibromatosis and most of the medical profession has never come across it.. It leaves me just feeling that nothing is happening to help families affected by it. thats why I have decided to try to raise a bit of money to put into research and anything you are able to donate will be gratefully appreciated.

It is a very complex condition, some of the disorders associated with NF are learning difficulties, deformities of facial and leg bones brain tumours , cancer, growth of internal lumps speech and language problems,  and large sometimes very large external lumps that can be painful.

At the moment Nicole leads a very happy life and she accepts her 'problems' well, but all this could change anyday since it is such an unpredictable condition. Unfortunately it is such a long name, but if you could remember Neurofibromatois (NF) for short I would feel that I have done something useful

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor .: NfA gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

thank you so much from Nicole and all of us that are connected with this condition in anyway.

What a lovely happy smiler! Donation by David Minett 26/11/09  

Donation by David Minett 18/11/09  

maria Donation by vanessa martin 09/11/09  

Donation by melissa chinery 31/10/09  

Hello Smiley-a very special little girl Donation by David Minett-Grandad 30/10/09  

Keep up the good work guys! Sloane x Donation by Sloane Phillips 28/10/09  

baird Donation by vanessa martin 24/10/09  

Donation by Helen Driver 20/10/09  

I'm an old friend of your parents living in Bermuda and my wife and I are happy to donate on behalf of Nicole Donation by Reginald White 19/10/09  

Donation by Nick Paige 16/10/09  

Donation by vanessa martin 16/10/09  

Donation by t shirts 13/10/09  

We wish you all the best from friends of David in Australia Donation by Barbara Jamison 29/09/09  

Donation by Anonymous 23/09/09  

Donation by Stuart, Shelley, Dylan and Taylor Munday 23/09/09  

Laurianne, Gisto, Anna Damon, Shirley, Betty,Diedre Stuart Donation by David Minett 22/09/09  

Donation by David Minett 22/09/09  

Donation by Andrew Minett 21/09/09  

Donation by Anonymous 18/09/09  

very best of luck with the walk- really hoping I can join you. Keep on enjoying your riding Nicole xxx Donation by Tracey Whittington 18/09/09  

Margaret and George wish you well in your project Nicole is a very Special Great Neice Nicole is a very special great Neice. Donation by george margaret martin 17/09/09  

Good luck Vanessa on your walk and your challenge to educate people about NF. Nicole enjoy your bike ride from Pollyanna Donation by karen & Pollyanna Groves 16/09/09  

"C'est quant on n'a plus d'espoir qu'il ne faut désespérer de rien" Sénèque. Donation by John The one and only ! 16/09/09  

Well done for the amount you have raised so far. Donation by Graham Atfield 16/09/09  

X X Donation by Fay & Pete 16/09/09  

I know how important it is to raise money for research.Hope you enjoy your walk.All the best for Nicole in the future. Helen and family Donation by Helen Aplin 13/09/09  

Donation by Crawf 09/09/09  

Hope this helps you reach your goal xxxxxxxxx Donation by Mandy Quy-Verlander 08/09/09  

Good luck raising loads of pennies. Make sure Jason does not get you lost! Donation by Nigel Hammond 06/09/09  

Donation by JT. 05/09/09  

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* Total raised online: £4,985.50
  Offline donations: £331.00
  Gift Aid plus supplement: £1,239.33

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