Epilepsy kills 3 people a day!

Shocking way to start but its true. Now I have your attention please take two minutes to read our story.

Time to update this!!!

My precious boy who was just 9 weeks old when I wrote this is now a cheeky 13 month old little boy. Training around having a baby has been challenging as well as dealing with the epilepsy. I have a burning desire to run, but some days its the hardest thing in the world to go and do because my confidence just isnt there, that on top of the fact Im not as physically fit as I was! So despite two marathons and countless other races Silverstone 2016 was my biggest challenge to date, both physically and mentally. It was hard, really hard! Please have a look and sponsor us for a very very worthy cause. All being well I will also go on to run the Great South Run (10 miles) & The Royal Parks Half Marathon  in October.

Our story

I have had epilepsy since I was 7, it has been part of my life on and off for 23 years, its had its moments but Ive always come out fighting. But never more so than through my pregnancy with our first baby. Noah entered this world in June 2015 and he was a much wanted and is a much loved perfect little boy, but the pregnancy was hell, my previously controlled epilepsy became uncontrollable . This resulted in numerous tonic clonic seizures,rides in ambulances, hospital admissions, an increase in simple and complex partial seizures and left me a shell of my former self. I became a nervous wreck and very reliant on Chris.It has blighted our lives more than I care to remember in during my pregnancy, it should have been some of the happiest times of our lives, but because of the epilepsy it instead became a time filled with angst and worry as well as joyful times.However I wasnt sure I had the strength to come out fighting and beat the epilepsy yet again. I discovered that there was very little out there for pregnant women with epilepsy, so I began writing a blog (fairyfaye1986.weebly.com) it gave me something to focus on and a purpose. All research may not be of any help to us now but hopefully it will be for the younger ones who go on to have children and maybe if we have baby No.2.
Chris throughout this time and since Noahs arrival is a rock and supported me in the blog, and now here he will be there supporting me again on 13th March. 
Although he will tell you he is just being a father and a husband,nothing out of the ordinary,nothing more than be should as a Dad and husband. He doesnt realise he has gone above and beyond.
I broke my foot during the London Marathon 2014 and Silverstone marked almost two years since I last ran an organised race. I had medical support to start training for this in terms of both my injury (although with lots of warnings!) and following pregnancy. The neurologists opinion is wary. The races will be a huge step forward for me as epilepsy has dented my confidence in more ways than one in recent times. Noah is now a year old and he is my reason for kicking epilepsy in the backside once more, and I want to make him proud. The epilepsy still is out of control and it makes this running business so much harder. But all of this is for and because of him.

Why Young Epilepsy?

Why not? They are an amazing charity and do some amazing work. I only wish I'd found them when I was a young person with epilepsy. Firstly the team have been so supportive of my blog and sharing our story. They shortlisted me for a Champions Award, which was a HUGE honour, and a year later Chris was also shortlisted. I always wanted to give something back to them but never more so than after myself and Chris watched Epilepsy and Me on BBC3 on 10th August 2015. This highlighted the amazing work they do at St Piers College and the Neville Centre. They really are doing their best to help young people live life with epilepsy.
They are currently looking for funding as they are in the final stage of an amazing and ambitious appeal to build
a new Education Resource Centre for the children at St Piers School.
You can help them get to the end and open the doors in time for Spring
Term 2016.The new centre will have specifically tailored facilities for young
people with complex needs. They will also use this amazing new facility to
undertake pioneering research into the barriers that epilepsy has on
educational attainment.

Check out Young Epilepsy website and you will see what a worthy worthy cause they are. If not for that reason then PLEASE donate because this is a huge personal challenge for me at this stage in my life with epilepsy, for our little boy who has been so supported by this charity before he was even born, or just because you care about the three of us.
Your donation WILL make a huge difference and would mean so much to the three of us.

Their website: http://www.youngepilepsy.org.uk/

or follow them on twitter @youngepilepsy

Again follow our journey with Noah: fairyfaye1986.weebly.com
Or on facebook
https://www.facebook.com/groups/739520702798749/
or twitter @fairyfaye1986

Thank you from the bottom of our hearts.

Faye, Chris & Noah xxxx