Karen & Marty Westall's Fundraising Page
Page creator: Karen Westall
Page closes: 23rd Apr 2008
Fundraising Page Image
About the charity : Jennifer Trust for SMA Jennifer Trust for SMA
The Jennifer Trust for Spinal Muscular Atrophy works with children and adults who have spinal muscular atrophy, and their families. The charity offers a range of support services to help families cope with both the emotional and practical issues that the diagnosis brings, whilst funding research to find answers for tomorrow.
Charity Registration No 1106815
Fundraising target:  £30,000.00
Donations so far:  £ 25,369.00
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Thank you for making it this far. Please dig deep and sponsor myself and Martin online.

This is a photo of my beautiful Niece, Georgia, and below a video, who back in September was diagnosed with the medical condition, Spinal Muscular Atrophy Type 1, and, tragically, was given just 2 - 5 months to live.

After a very brave fight against this terrible condition, Georgia died on Sunday January 6th 2008, the night before her father's birthday, aged just 8 months.

SMA Type 1 is a genetic disorder currently affecting around 100 babies a year.  Most people have never heard of it, but it is the number one genetic killer of infants and toddlers.

I am planning to walk 52 miles over 3 days, together with Martin and several of  Emma (my sister) and Nick's friends, to raise money and awareness for the Jennifer Trust. We plan to walk along the River Thames and the Kennet Canal finishing at Emma, Nick and Georgia's house near Newbury on the 9th of February 2008.  Gav Thompson and Matt Whitticase are walking as Fat Men Walking, as indeed they are, and also Amy Tattersall.  Please give generously, as it would mean so much to Emma and Nick.  If any one fancies joining us, please do, the more the merrier as they say.  In September I am planning on completeing a personal challenge by taking Georgia's spirit with me on an overseas trek to Peru raising awareness for the Jennifer Trust.

The Jennifer Trust is a charity that was established to help the parents, grandparents, family and friends to cope and deal with the devastation that this condition causes. They are also undertaking research into tackling SMA and finding a cure. We all want to do this walk to raise money for this charity as we have experienced, first hand, their incredible support. Two days after Georgia was diagnosed with SMA, Emma and Nick received 2 crates of toys that are specifically designed for babies with SMA. The toys are on loan for as long as required. The Trust has also given us advice on bereavement counselling in respect of our 3 children, who will find it very difficult to understand and cope with this news.  For more information on the Jennifer Trust please go to www.jtsma.org.uk . 

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Jennifer Trust for SMA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you. If you are a higher rate taxpayer, 23% of your donation will come back to you in tax relief by putting the donation on your tax return.

For more information about this tragic diagnosis and the Jennifer Trust follow the link opposite. 
So please sponsor us now!

Many thanks for your support and those of you with children, please give them a special hug tonight.

Karen and Martin XX
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Display Name Date Amount Tax Bonus  Comment
Tina Harrigan-James 20/04/2008 £30.00 £8.46 our love and thoughts are with your family 
The Higton Family 02/04/2008 £20.00 £5.64 Congratulations on completing the walk, with our love and best wishes 
Jan,Marijana and Boris Predojevic 21/03/2008 £20.00 n/a god bless you all 
Sarah and Jonathan Barnes 13/03/2008 £30.00 £8.46 Well done on completing your walk. Our thoughts and love are with you.  
colettecartwright 05/03/2008 £52.00 £14.67 well done and god bless  
Jessica Barrett 29/02/2008 £20.00 £5.64  
James and Louise Feltham 27/02/2008 £20.00 £5.64 With our love and very best wishes. 
Rosemary Fagan 20/02/2008 £50.00 £14.10  
Paula and Andrew 18/02/2008 £250.00 £70.51  
Melissa Milne 18/02/2008 £20.00 £5.64  
Edward and Cecilia Hughes 15/02/2008 £50.00 £14.10 We heard from Henri about your very sad loss and great bravery 
Katherine Carl and Alec Dukes 14/02/2008 £30.00 £8.46 May the Lord make his face shine upon you . 
john/tracey chad 13/02/2008 £25.00 £7.05 Our thoughts are with you. In memory also of Matthew John Chad, our son who died from SMA Type 1. 
Caroline Ayre 13/02/2008 £5.00 £1.41 In memory of Evie Porter, "Our Sunshine Girl", who died of this condition aged 14 and 1/2 months 
Steve Tebb 12/02/2008 £20.00 £5.64 Thinking of you Emma - good luck. x 
Jo Harris 12/02/2008 £50.00 £14.10 Good luck Em And Ern!  
Adie and Carrie 09/02/2008 £50.00 £14.10 Em and Nick - thinking of you always x 
Cathy Jones 08/02/2008 £20.00 £5.64 With Much Love  
Alison Witkover 08/02/2008 £20.00 £5.64 Thinking of you and good luck on the walk  
Lucie Grocott-Crosse 08/02/2008 £10.00 n/a Good luck with your walk - thinking of you all x 
Tricia and Lawrence Duffy 08/02/2008 £20.00 £5.64  
Kellie Sharp 07/02/2008 £20.00 £5.64 You will be well and truly on the way now so I hope it's going well  
nicola ceccolini 07/02/2008 £50.00 £14.10 Thinking of you all and sending our love, nicola and luca x 
Nerisha, Firoz and Zafir Kajee 07/02/2008 £20.00 £5.64 Thinking of you Em & Nick 
Kylee Ingram 06/02/2008 £20.00 n/a  
Helen Williamson 06/02/2008 £20.00 £5.64 Good luck. Thinking of you all x 
Janie, Richard, Charlie, Emily and Molly 06/02/2008 £50.00 £14.10 How Fit must you be now!!! Good luck,our thoughts and love are with you both. x x x 
Rebecca Porter 06/02/2008 £50.00 £14.10 Donated in memory of Evie 28/05/04-10/08/05, with love the Porter Family  
Melanie-Jane Clark 06/02/2008 £20.00 £5.64 Good luck with the walk and your fundraising! 
Allan & Sue 06/02/2008 £50.00 £14.10  
David Shield 06/02/2008 £20.00 £5.64  
Karen Mullins 06/02/2008 £20.00 £5.64 Thinking of Emma and Nick.  
Meg Fisher 06/02/2008 £20.00 £5.64 Good luck with the walk. My thoughts are with Emma & Nick. 
Clare Benyon 06/02/2008 £20.00 £5.64 Donated in memory of Oliver Benyon 11/5/07 - 16/10/07 - Best of luck! 
Jon & Jane Creasey 06/02/2008 £100.00 £28.21 Best wishes to you all - Jon & Family xxx 
Nikki Cooper 06/02/2008 £50.00 £14.10 My thoughts & love are with you all xx 
Adrian Mackenzie 06/02/2008 £20.00 £5.64 Good Luck! 
James Hopkins 06/02/2008 £20.00 n/a All the best for the walk 
Jason Foxwell-Moss 06/02/2008 £10.00 £2.82 Best of luck 
Gareth Tansey 06/02/2008 £50.00 £14.10 With best wishes to Emma and Nick 
Gary Noot 06/02/2008 £10.00 £2.82 Sad news, great cause-best wishes.x.  
ayres family 06/02/2008 £50.00 £14.10 with lots of love to you all 
Joyce Crosse - Clover & Eliza's Grandmother 01/02/2008 £10.00 n/a Good luck with your fund raising and walk! 
Straw family 30/01/2008 £10.00 n/a With love xxx 
David & Lorna Boucher 27/01/2008 £20.00 £5.64 In memory of Georgia. Good luck to the walkers 
The Gibb Family 21/01/2008 £10.00 £2.82 with best wishes 
Stuart Patrick 18/01/2008 £10.00 £2.82  
Tracy Benjamin 18/01/2008 £50.00 £14.10 Good luck and well done on raising so much money for such a wonderful cause.  
Polly Oxley 16/01/2008 £20.00 £5.64 With very best wishes, love and support 
andy rosson 16/01/2008 £25.00 £7.05  
Stephen Hankinson 16/01/2008 £50.00 n/a  
Spides & family 16/01/2008 £50.00 £14.10  
Carys Thomas 16/01/2008 £50.00 £14.10 So sorry to hear this sad news - my love to you all and good luck with the walk. CT xx 
steve Hocking 16/01/2008 £10.00 £2.82 ALL THE VERY BEST WISHES TO YOUR FAMILY  
The Downies 15/01/2008 £50.00 £14.10 Much Love the Downies 
Emma Fortescue 15/01/2008 £10.00 £2.82 Thinking of you all and hope the walk goes well. 
Parents of Henri High 13/01/2008 £10.00 n/a Henri has told us of your strength ,courage and love. She was a lucky little girl. 
Roddy & Ruth 09/01/2008 £10.00 n/a  
MacKeans 09/01/2008 £50.00 £14.10  
Dean Ball 08/01/2008 £100.00 £28.21 good luck 
Sandra, Paul, Henry & Eleanor 07/01/2008 £35.00 £9.87 with our love 
James H 07/01/2008 £20.00 £5.64  
Gary Williams 02/01/2008 £10.00 £2.82  
Hugh & Ally Tidbury 31/12/2007 £50.00 £14.10  
Juliet Cook 21/12/2007 £20.00 £5.64 With Very Best Wishes 
julia wigart 15/12/2007 £100.00 n/a Thinking of you all 
Anthony and Monique Browne 13/12/2007 £50.00 £14.10 With our best wishes and good luck with this excellent cause 
Sophie Nevile 12/12/2007 £20.00 £5.64 Hennie told me about this very worthy cause. Good luck. 
Joanna and David 12/12/2007 £10.00 £2.82  
Richard Harrison 11/12/2007 £50.00 £14.10 We hold you are in our thoughts 
Francesca Anton 10/12/2007 £10.00 £2.82 Best wishes from a friend of Nat and Hen High 
Tony & Laura Barber 10/12/2007 £30.00 £8.46  
Suzanne Brown 10/12/2007 £100.00 £28.21  
Robert & Tricia Colvill 08/12/2007 £50.00 £14.10 For Georgia, with our love 
Carol and Mike Kidd 08/12/2007 £10.00 £2.82 Best wishes to the family 
Jackie & Neil 06/12/2007 £25.00 £7.05 Sending our love to all the family. 
Andrea 06/12/2007 £5.00 £1.41  
Doc 06/12/2007 £20.00 £5.64 A very worthy cause! Very best of luck with everything! 
Chris Jones 06/12/2007 £25.00 £7.05 Best wishes from a friend of Henrietta 
Nat, Henrietta, Maddie and Will 06/12/2007 £50.00 £14.10 Thinking of you all x 
Michael Williamson 03/12/2007 £25.00 £7.05  
John and Diana Chadwick 03/12/2007 £50.00 £14.10 Best wishes and good luck for the walk 
Chris & Peter Clark 03/12/2007 £20.00 £5.64 Our thoughts with you and your family. Good Luck 
Sophie White 03/12/2007 £50.00 £14.10 I hope this donation helps a little. 
Michael Harrison 02/12/2007 £100.00 £28.21 Thinking of you all 
Rebecca, Steve and Amelia Underwood 30/11/2007 £52.00 £14.67 Wishing you the very best of luck. xx 
Robyn & Rosie Nikopoulos 27/11/2007 £100.00 £28.21 Love to you all. 
James Cashmore 25/11/2007 £20.00 £5.64  
Carolyn Howard 24/11/2007 £20.00 £5.64  
Barry Ashmore 23/11/2007 £30.00 £8.46  
david richardson 22/11/2007 £50.00 £14.10  
Katy Bellhouse 22/11/2007 £10.00 £2.82 Wishing you all the best for such a worthwhile fundraising cause xxx 
Kathy Carter 22/11/2007 £5.00 £1.41  
Andy Kerman, Janice Martin, Kerman & Co LLP 22/11/2007 £100.00 £28.21  
Nick Barker 20/11/2007 £50.00 £14.10  
Ed & Ica Vogelzang 20/11/2007 £20.00 £5.64  
Bracey 20/11/2007 £50.00 £14.10 Good luck with the walk and to all affected at this difficult time. 
Anna & Robert King 19/11/2007 £30.00 £8.46  
Lee Clarke 18/11/2007 £50.00 £14.10 Very best wishes for your walk and for such a worthy cause 
Kit & Penny Power 18/11/2007 £50.00 £14.10 With our very best wishes to you all 
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*Total donated online: £6,443.00
Amount raised offline: £18,926.00
Gift Aid plus supplement: £1,635.33
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