Raised: 85%
Target: £30,000.00
Raised so far: £25,369.00
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My story

 

Thank you for making it this far. Please dig deep and sponsor myself and Martin online.

This is a photo of my beautiful Niece, Georgia, and below a video, who back in September was diagnosed with the medical condition, Spinal Muscular Atrophy Type 1, and, tragically, was given just 2 - 5 months to live.

After a very brave fight against this terrible condition, Georgia died on Sunday January 6th 2008, the night before her father's birthday, aged just 8 months.

SMA Type 1 is a genetic disorder currently affecting around 100 babies a year.  Most people have never heard of it, but it is the number one genetic killer of infants and toddlers.

I am planning to walk 52 miles over 3 days, together with Martin and several of  Emma (my sister) and Nick's friends, to raise money and awareness for the Jennifer Trust. We plan to walk along the River Thames and the Kennet Canal finishing at Emma, Nick and Georgia's house near Newbury on the 9th of February 2008.  Gav Thompson and Matt Whitticase are walking as Fat Men Walking, as indeed they are, and also Amy Tattersall.  Please give generously, as it would mean so much to Emma and Nick.  If any one fancies joining us, please do, the more the merrier as they say.  In September I am planning on completeing a personal challenge by taking Georgia's spirit with me on an overseas trek to Peru raising awareness for the Jennifer Trust.

The Jennifer Trust is a charity that was established to help the parents, grandparents, family and friends to cope and deal with the devastation that this condition causes. They are also undertaking research into tackling SMA and finding a cure. We all want to do this walk to raise money for this charity as we have experienced, first hand, their incredible support. Two days after Georgia was diagnosed with SMA, Emma and Nick received 2 crates of toys that are specifically designed for babies with SMA. The toys are on loan for as long as required. The Trust has also given us advice on bereavement counselling in respect of our 3 children, who will find it very difficult to understand and cope with this news.  For more information on the Jennifer Trust please go to www.jtsma.org.uk . 

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor us: Jennifer Trust for SMA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you. If you are a higher rate taxpayer, 23% of your donation will come back to you in tax relief by putting the donation on your tax return.

For more information about this tragic diagnosis and the Jennifer Trust follow the link opposite. 
So please sponsor us now!

Many thanks for your support and those of you with children, please give them a special hug tonight.

Karen and Martin XX

our love and thoughts are with your family Donation by Tina Harrigan-James 20/04/08  

£30.00 + £8.46 Gift Aid

Congratulations on completing the walk, with our love and best wishes Donation by The Higton Family 02/04/08  

£20.00 + £5.64 Gift Aid

god bless you all Donation by Jan,Marijana and Boris Predojevic 21/03/08  

£20.00

Well done on completing your walk. Our thoughts and love are with you. Donation by Sarah and Jonathan Barnes 13/03/08  

£30.00 + £8.46 Gift Aid

well done and god bless Donation by colettecartwright 05/03/08  

£52.00 + £14.67 Gift Aid

Donation by Jessica Barrett 29/02/08  

£20.00 + £5.64 Gift Aid

With our love and very best wishes. Donation by James and Louise Feltham 27/02/08  

£20.00 + £5.64 Gift Aid

Donation by Rosemary Fagan 20/02/08  

£50.00 + £14.10 Gift Aid

Donation by Paula and Andrew 18/02/08  

£250.00 + £70.51 Gift Aid

Donation by Melissa Milne 18/02/08  

£20.00 + £5.64 Gift Aid

We heard from Henri about your very sad loss and great bravery Donation by Edward and Cecilia Hughes 15/02/08  

£50.00 + £14.10 Gift Aid

May the Lord make his face shine upon you . Donation by Katherine Carl and Alec Dukes 14/02/08  

£30.00 + £8.46 Gift Aid

Our thoughts are with you. In memory also of Matthew John Chad, our son who died from SMA Type 1. Donation by john/tracey chad 13/02/08  

£25.00 + £7.05 Gift Aid

In memory of Evie Porter, "Our Sunshine Girl", who died of this condition aged 14 and 1/2 months Donation by Caroline Ayre 13/02/08  

£5.00 + £1.41 Gift Aid

Thinking of you Emma - good luck. x Donation by Steve Tebb 12/02/08  

£20.00 + £5.64 Gift Aid

Good luck Em And Ern! Donation by Jo Harris 12/02/08  

£50.00 + £14.10 Gift Aid

Em and Nick - thinking of you always x Donation by Adie and Carrie 09/02/08  

£50.00 + £14.10 Gift Aid

With Much Love Donation by Cathy Jones 08/02/08  

£20.00 + £5.64 Gift Aid

Thinking of you and good luck on the walk Donation by Alison Witkover 08/02/08  

£20.00 + £5.64 Gift Aid

Good luck with your walk - thinking of you all x Donation by Lucie Grocott-Crosse 08/02/08  

£10.00

Donation by Tricia and Lawrence Duffy 08/02/08  

£20.00 + £5.64 Gift Aid

You will be well and truly on the way now so I hope it's going well Donation by Kellie Sharp 07/02/08  

£20.00 + £5.64 Gift Aid

Thinking of you all and sending our love, nicola and luca x Donation by nicola ceccolini 07/02/08  

£50.00 + £14.10 Gift Aid

Thinking of you Em & Nick Donation by Nerisha, Firoz and Zafir Kajee 07/02/08  

£20.00 + £5.64 Gift Aid

Donation by Kylee Ingram 06/02/08  

£20.00

Good luck. Thinking of you all x Donation by Helen Williamson 06/02/08  

£20.00 + £5.64 Gift Aid

How Fit must you be now!!! Good luck,our thoughts and love are with you both. x x x Donation by Janie, Richard, Charlie, Emily and Molly 06/02/08  

£50.00 + £14.10 Gift Aid

Donated in memory of Evie 28/05/04-10/08/05, with love the Porter Family Donation by Rebecca Porter 06/02/08  

£50.00 + £14.10 Gift Aid

Good luck with the walk and your fundraising! Donation by Melanie-Jane Clark 06/02/08  

£20.00 + £5.64 Gift Aid

Donation by Allan & Sue 06/02/08  

£50.00 + £14.10 Gift Aid
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* Total raised online: £6,443.00
  Offline donations: £18,926.00
  Gift Aid plus supplement: £1,635.33

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