MESSAGE FROM WAYNE
I can't thank you all enough for your generosity. It was lovely to see so many old names pop up, and they really did spark some great memories of my times working with you all. With your help we now have enough to start the stem cell trial, which hopefully will lead to some positive results and possible treatments. Without getting too heavy, this is a seriously underfunded disease, and you really are helping a lot of people as well as myself with your efforts. I now work from home full time, and will continue to do so for as long as I can. I would love to hear from any of you, would be good to catch up on what you've been up to. My e-mail address wsammut1@sky.com Once again thank you all, not just from me but from Kay and Maddie, this is a very tough situation for them as they deal with it on a day-to-day basis. Having said that, our motto is "it is what it is" and we still manage to have a laugh about it somehow. Love to you all, Wayne, Kay and Maddie.
Details of fundraising request
Greetings to all of the friends, associates, acquaintances or just those fortunate enough to cross “paths” with Wayne Sammut who have visited this page, set up by Ken Purchase, Lynn Collins & Jill Hagland. Please don’t hesitate, take some time to read the text and take a look at the channel 4 link. We are sure that once you have you will want to help and you can do that by simply clicking to donate.
WAYNE'S AIM
New hope identified in muscle stem cell therapy being investigated by the specialist MND team at Barts.
Exciting breakthrough desperately needs funding to take to the next stage.
We need £20,000.00 urgently to get the project up and running.
We want this page to spread the word far and wide through all Wayne's Family and Friends
Donate a little, Donate a lot, Sponsor an event & give it your best shot
Just remember TIME is something we haven’t got!
Diagnosed with MND in 2009 Wayne Sammut's condition means his body is wasting away to a point here he is almost unable to move or talk. To hear first hand from Wayne who recently appeared on TV for a Channel 4 debate, please follow the link below:
http://www.channel4.com/programmes/4thoughttv/4od#3229849
A big thank you to everyone already involved in fundraising
but if you haven’t helped already or would like to help some more please help NOW.........
Fighting Motor Neurone Disease
Motor neurone disease (MND) is a progressive neurodegenerative disease that leads to deterioration of the upper and lower motor neurons – the cells that control voluntary muscle activity including speaking, walking, breathing, swallowing and general movement of the body. From the onset of symptoms, life expectancy typically ranges from six months to five years. MND affects over 5000 people in the UK each year and there is currently no effective treatment – but still research is chronically underfunded.
Bart’s and The London Charity needs to raise £100,000 to start a 3 year research project into the role of muscle stem cells in Motor Neurone Disease.
The project will explore whether a particular gene within the stem cells can have an impact on disease progression, which could then form the basis of a therapeutic target for MND.
We need to raise £100,000 to start the project - we are just £20,000 short of this target.
Past Events
Wayne's 10k team - raised £15,000
CVC's Blenheim Triathlon team - raised £25,000 (further funds have been pledged)
FTSE 100 Appeal - raised £2,500
Future Events
Join the Grim Challenge, 3rd December 2011 - http://www.grimchallenge.co.uk/
Christmas drinks and raffle TBA
