WJ Linkline Group raising money for Rett Syndrome Research Trust UK

WJ Group is raising money for Reverse Rett

Participants: George Weatherson, Alan Brookes, Shaun Brookes, Pete Woolley, Andy Walker, Andy Stapleton, Ivan Jones, Scott Logan, Garry Duncan, Andy Stubbs, Gary Gough, Neil Steggles, Andrew Fawcett, Douglas Ewing, Loren Jackson and Alex Frankleton

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Coast 2 Coast 2013 · 19 September 2013

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thanks for taking the time to visit our JustGiving page.

A group of our employees are taking on the Coast 2 Coast Challenge to raise money for charity. Training has already begun for this gruelling 140 mile bike ride, which will be taking place 19th - 21st September 2013.

So please dig deep, we'd love to raise lots of money for Team Blake!!

15 month old Blake, suffers from an extremely rare genetic disorder called MeCP2 Duplication Syndrome, there are only 25 sufferers in the UK. No government funding is available for such rare conditions, and it is up to friends and families to raise money to fund research. With the right amount of money, a cure is a very definite possiblity.

MeCP2 Duplication Syndrome is a condition that occurs almost exclusively in males and is characterised by moderate to severe intellectual disabilty. Most people with this condition also have weak muscle tone in infancy, feeding difficulties, poor or absent speech, epilepsy, which is very poorly controlled, and muscle stiffness (spasticity). Individuals with MeCP2 Duplication Syndrome have delayed development of motor skills such as sitting and walking. Many cannot walk at all. Many individuals with this condition suffer from severe recurrent respiratort tract infections, often leading to pneumonia. This is a major cause of death in affected individuals, with almost half succumbing by age of 25

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So please dig deep and donate now.

Donation summary

Total
£2,500.00
+ £321.25 Gift Aid
Online
£1,975.00
Offline
£525.00

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