Story
As many of you reading this will aready know, my daughter Morven (aged 5) suffers from the life threatening condition Cystic Fibrosis (CF). CF is the UK’s most common life threatening inherited disease which affects just over 9,000 people in the UK. 1 in 25 of the population carries the faulty gene that causes CF. CF affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. The mucus attracts bacteria causing inflammation and permanent lung damage. There is currently no cure for Cystic Fibrosis. My aim is to raise as much as I can for the Cystic Fibrosis Trust, the leading Cystic Fibrosis charity in the UK, and the only one dedicated to every aspect of CF, from helping families adjust to diagnosis, to funding cutting-edge research. Although huge progress has been made in treating CF sufferers and in working towards a long-term cure by means of gene therapy, Morven’s life expectancy is less than half what it would be if she did not have CF. The Cystic Fibrosis Trust offers thousands of children like Morven, and their families, much-needed support and long-term hope.