In 2001, Sara Hunt found that her eldest son, Alex, had Adrenoleukodystrophy (ALD) - a rare neurological disorder that turns healthy, young boys into semi-vegetative state within a matter of months.

While caring for her son, Sara found that there was no support or advice to help her. So, she decided to set-up a charity to ensure other patients and families are able to get the support and advice to help them care for their son.

At present, the charity provides emotional and financial support and practical information and advice to patients and families. We have an Annual Weekend that allows patients and families to share their experiences. We provide grants to patients and families to help them cover costs for accessing care, equipment or therapy, undergoing a bone marrow transplant, or for families going through bereavement. We also have a series of practical information leaflets and a website dedicated to providing patients and families with a reliable and accurate source of health and social care information.

We are now looking to fund vital research looking into finding better treatment or a cure for the disorder. Last year, Alex passed away aged 19. Help us to save the lives of other young boys affected by this cruel and devastating disorder. Donate now.